Hi, I am 26 years old and have been suffering from pernicious anaemia since the age of 18. I grew up in Scotland but moved to Sweden at the age of 16 after feeling very unwell for a matter of years it was found that I suffered from very low levels of B12. I received injections of B12 every week for the first month and then an injection once a month until finally injections were given every other month. As I was such a young age and ate foods high in B12 my Dr in Sweden was concerned as to why I would have a deficiency and was unable to absorb B12 tablets, a gastric biopsy was taken and no issues were found my stomach lining was not ulcerated.
At 23 years old I move back to Scotland, I have received one B12 injection in the last three years upon taking blood tests I was told by my doctor that my levels were at the lower end of normal fine yet I feel awful. The old feelings are just as strong as they have been when I first showed symptoms.
In the last three months I have seen the doctor over 7 times at first I was told the dizziness, nausea, heart palpitations, tightness of my chest, numbing and tingling in hands and feet were all signs of anxiety. This last month and a half I have had chronic headaches and what feels like blocked ears my first three visits to the doctors I was told it was a virus I have no been told by another doctor that it is allergies but no one has checked my bloods again and when they did check my bloods for B12 before I was never told the results just that I was fine.
I am unable to keep up with my university work and have been put on academic probation from being off so much and when i do attend i feel foggy, unfocused, confused, slow, faint and nauseous. I have fainted twice that I know of but feeling faint and nauseous every day. I have fallen over many times my balance isn't that what used to be. My quality of life is very very poor.
My questions are many but how do I get help when all I get is excuses. I can't understand how i can suddenly be cured of a deficiency which the cause couldn't be diagnosed in Sweden but was believed to simply be my bodies inability to absorb the vitamin.
How can I find help when the doctors don't listen?
How can I prove I have B12 deficiency when blood work is hard to come by and doesn't always prove that I have the deficiency?
I feel like my mind is deteriorating at an alarming rate that no one listens.