My levels are so low, under 5, anaemic too, awaiting an Iron infusion, I also ave B12 injections every 3 months, initially the Gp, who is great btw, told me I had Pernicious Anemia, then next blood test I didn't have Pernicious type, just low iron stores with Anemia.....why ca nt my body store serum ferritin? Could I have Pernicious instead go just Anemia.....I'm so weak and feel so sick....can you help?
Thank you
Jill
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Jill60
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Sending a big hug your way Jill, I'm not sure how much I can help as I have no experience of low iron. It's good you are getting the infusion, soon I hope?
I think your doctor has confused you regarding Pernicious Anaemia (PA). Have a read of the PA Society leaflet on the condition:
You might feel better if you have more frequent injections, very few people can last 3 months. Low iron is common in PA as is low folate, have you had your folate levels checked? Also ask your doc to check vitamin D, and a referral to a gastro might be a good idea.
Oops sorry Hamster, just found this reply, ty so much....funny cos ten mins. Go before I found your comment I wondered that lol.....I got the infusion in the end, and it went from 5 to 67, still low, should be 150 I was rod, anyway, prob need another one.....just wondering, notice you know so much, do you think there is a connection to also having B12 deficiency? Look forward to your reply.......reason I havnt been on here since last comments I made, I have just had severe vertigo.....ugh! For five weeks! Tc Jill
Hi Hamster, thanks for your reply, regards B12, your right, need them more frequently......told tody that having iron infusion, Gastro team are looking after me ATM, soon to have another CT scan, as I also suffer with Gastritis...inflamed stomach lining......very painful......I'm hoping to get answers as to why the Serum Feritin won't store.......and Also get regular Anemia......I'm grateful for your suggestions and thanks for the link....tc Jill
Well it sounds like you have PA to me. Gastritis, low stomach acid, low iron, all very common. If you feel up to it I would recommend a read of the PAS forum section called "My Story". You can read without being a member. You will see similar stories to your own.
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