Balance Problems...: I was diagnosed with... - Cure Parkinson's

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Balance Problems...

wordworks2001 profile image
15 Replies

I was diagnosed with PD in 1998, probably had it a couple of years before that. I also have hypertension, coronary artery disease and had a heart attack and a 4-vessel coronary-artery-bypass-graft this past June. So when I say I have "balance problems," there are many possible causes. I already know I suffer from orthostatic hypotension, possibly from my medications or my cardiac-related problems. But this balance issue is not dizzyness, nor would I describe it as light-headedness. It only bothers me when I am walking and then only once or twice a day, if it all. Some days it is very troublesome and my gait veers my body to the right, never the left. My wife walks on my right when I have these balance problems and bumps me back on course. Can anybody else relate to this problem and how have you addressed it?

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wordworks2001 profile image
wordworks2001
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15 Replies
JennyR profile image
JennyR

My PD diagnosis was finally addressed because of balance problems. Other symptoms were probably there as well, but I first started falling in the garden because of balance - and always to the left side. My primary physician thought I was not getting enough blood and oxygen to my brain and sent me to a cardiologist. Since I "aced" of the his tests (and he was thorough), he sent me across the hall to a neurologist, who spotted my dragging left leg, my listing to the left and my falling when put through a series of physical exercises. He then, identified my other symptoms (which I failed to put together with the balance problems) and I was put on Stalevo for a 10 day trial. It worked on easing the balance problems, but as other symptoms surfaced, other drugs (Azilect and additional carba/leva) were added. My advice is to consult a reputable neurologist ASAP. Not having cardiological problems, I cannot advise you further. Please see a qualified neurologist who will work with your neurologist. That is most important. Good luck and God bless.

jupiterjane profile image
jupiterjane

Hi Wordworks, I have a similar balance problem but mine is on the left. When I go off to the left I look like a drunk old hippie chick, usually a wall or a curb or "My Robert: stops me. Even when I sit on the couch I lean to the left. If I don't put a pillow under my left butt checkwhole sitting on the sofa, I will end up with my face inbetween the couch cushion or in Roberts lap. (Robert doesn't mind-Tee-hee)! I too have several health issue so it could be medications or the symptoms of any and all of the diseases. Just know, you are not alone!

Jupiterjane

wordworks2001 profile image
wordworks2001 in reply to jupiterjane

Thanks Jane. It always is reassuring to hear that someone else shares our symptoms! ;)

maryalice profile image
maryalice

I also have the problem of leaning, but I lean to the right which is my weaker side. I have to sit in a chair that has arms on it or I'll fall out of the chair. I asked my doctor about it and he said it's just part of having PD. One thing you can do is do exercises to build up your core strength with physical therapy. Someone who had the same problem told me that's what they did and it helped. It's worth a try. Blessings.

It usually happens in enclosed spaces i.e. small shops) if I turn round I often lose balance and go off to the right, try to correct myself which makes me swing to the left until I balance up (Best way I can describe it)

I have had many black looks from some People, and I know exactly what they are thinking, That I am drunk.

I usually just make the comment ''More water with the gin Trevor'' and carry on regardless.

Annie81963 profile image
Annie81963

I lean to the right also and really havent figured out why?? Its a very strange feeling to be off balance and veer to the right,I go see my Neurologist on 11/12 maybe he'll have an answer for me,I'll keep you posted.Take care and thanks for sharing,I really learn so much from everyone,we are not alone!

blessed4431 profile image
blessed4431

I'm 53 just diagnosed a little over a year ago. I just fell again last July and this past Monday had shoulder surgery to correct the damage from that fall. My PD Dr is sending me to a PT that specializes in PD. I will try to remember to touch base with you'll after next Tues appt to let you know what he suggest

wordworks2001 profile image
wordworks2001 in reply to blessed4431

Blessed, I strongly endorse BIG therapy. You can lear more about it here: lsvtglobal.com/ . I was falling at least once a week before I took the four week course of therapy over a year ago and haven't fallen since. The balance problem I am talking about in this question is not at all like the PD balance problems I had in the past.

blessed4431 profile image
blessed4431 in reply to wordworks2001

Yes I know about that program Im also going to speech therpy as of today waiting to get info about speech and the PT I see Tues at the VCU Parkinson center. He is the one that will refer to the think big. Im familiar with that program and it is wonderful

PatV profile image
PatV

If your neuro can refer you to a good PT, I would go for it. I'm very fortunate to have acccess to exercise classes for pwp's here in NYC. Alexander Technique, yoga, NIA, Movement (taught by a pwp), tai chi. They all address techniques for falling and balance. I've had so many injuries since my diagnosis but GOTTA KEEP MOVING!

PatV profile image
PatV in reply to PatV

strangely enough, most of the injuries occur in the hiatus between classes (10 to 12 weeks with 4 to 6 weeks off) :(

blessed4431 profile image
blessed4431 in reply to PatV

I exercise everyday I did long before Parkinson. I also take Tai Chi and practice this everyday and I also will be beginning the special exercise classes for PD starting next week. I hate to think how much I would be falling if it was not for all the above exercise

bmiairo profile image
bmiairo in reply to blessed4431

Did thi chi hlp?

wordworks2001 profile image
wordworks2001

Thanks for the replies Mary Alice, Oldtyke, Annie, Blessed and PatV. It is always great to share ideas.

jillannf6 profile image
jillannf6 in reply to wordworks2001

hi all

yeah it si grea t to share probs and ideas

i always lis t to the RIGH Tand fall to the right

adn try not ot turn right as then i fall as well

(not easy to accomplish either at hoem or when out)

i freeze too but on my left ankle which make sit v difficult ot move

lol JIll]

:-)

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