Does anyone have balance problems? - Cure Parkinson's

Cure Parkinson's

26,509 members27,921 posts

Does anyone have balance problems?

Evie54 profile image
7 Replies

I take care of my sister, she has Parkinson's. She was diagnosed in 2018, so she has been 3 years with Parkinson's. She was off balanced at the beginning, and had the shuffling gait. She saw a Neurologist, that said she had Parkinson's. She was given an MRI, and the Neurologist showed us that her swallowtail had decreased and that showed she had Parkinson's. She has never had tremors until lately, and she tilts her head to the side. She said her head feels heavy at times. Has anyone else had balance problems or had a heavy head.

Written by
Evie54 profile image
Evie54
To view profiles and participate in discussions please or .
7 Replies
ion_ion profile image
ion_ion

My balance and foggy mind were fixed by HDT. I was dxd 5 years ago.

Bolt_Upright profile image
Bolt_Upright

I have not been diagnosed with PD. I have been diagnosed with REM Sleep Behavior Disorder in April. They say it may be pre-Parkinson's. I noticed my head felt heavy this summer when cutting the grass. I do have a big head and I lost a bunch of weight so I'm hoping that is all it was. I'm not having the issue anymore, but have been taking HDT (and a lot of other stuff) since April.

Evie54 profile image
Evie54 in reply toBolt_Upright

Thanks for your response. I hope you don't have Parkinson's. I checked and HDT is High-Dose Thiamine. Vitamin B-1 makes my sister tremble too much.

Ladywolfdog7 profile image
Ladywolfdog7

You described my symptoms exactly. I really struggle with balance and fall frequently..heavy head and weak legs m nothing seems to help but am having vibration therapy atm

eschneid profile image
eschneid

My balance is terrible with PD. If I start to veer off to the left or right (which happens pretty often) I can easily fall if I don't grab the wall or something, just cannot stop myself. Same as on the basketball court, I am definitely good for a few falls during the games. I feel myself losing my balance & I cannot stop myself going down, very frustrating.

LauraYu profile image
LauraYu

My balance was terrible since the beginning of my PD. Recently I started taking Inositol and Citicholine, my feet are more flexible and able to make small adjustments. I feel this made my balance issue more manageable. My tremor also improved, and I am able to lay down on my bed face up, without whole body shaking like earthquake. I am currently taking 250 mg citicholine and 375 mg inositol, twice a day. Hope this helps!

pmmargo profile image
pmmargo

Yes Balance is my most consequential symptom since I keep falling. At night I am using a walker. But I dont know what to do about the day falls. Maybe a cane? I am only 61. I am focusing on it now that I am up to 7 falls so far. I will let you know when I learn something. Best wishes. Paul

Not what you're looking for?

You may also like...

Parkinson's but no rigidity ?

Hello, I am still having a terrible time trying to sort out my mother's medication. I managed to...
heidle profile image

I have found that strangers can be compassionate, gracious and kind. You just need to ask.

PD has stolen my ability to write, so many times I am in situations where I have to ask a stranger...
Precious44 profile image

Has anyone seen this?

April 12, 2012 4:35 PM PrintText Novel Parkinson's treatment reportedly reverses symptoms By...
Susie01 profile image

When your neurologist takes away your meds

Hi all, I posted recently about the terrible problem I've been having with my mother who goes into...
heidle profile image

." It's okay we love you" telling people that you have Parkinson's. and different responses.

Not many of my friends know that I have PD, I get tired of explaining how it effects me and that I...
Precious44 profile image