Spinal Cord Stimulation for PD Pain

[Pauldmd]

I was wondering if anyone here has any experience with electrical spinal cord stimulation for the treatment of pain related to PD. Meds have become ineffective and the pain disabling many days. I already have had dbs surgery so I figure at least I could keep some appliances running during a power outage with my internal batteries. I await your responses. Thanks in advance.

[JohnPepper]

Hi Paul. My sympathies are with you and I understand that you have done everything you can to overcome your problems. I am not claiming that I can help you, but maybe there is a chance that I can.

I have overcome most of my Pd symptoms by learning to do fast walking! You may feel that this is not possible for you, but it has helped a lot of other people.

Most people start by walking for 10 minutes every second day. They do not walk every day, but they do walk as fast as they can every second day. Every second week they add on another 5 minutes until after 6 months they are walking for one hour, three times a week. By then they have become physically more healthy and a lot fitter.

There is a scientific reason for the improvement in my condition. In 1991, two scientists in the USA discovered a protein in the brain called GDNF. That stands for Glial Derived Neurotrophic factor. Glial cells are support cells in the area of the brain that is affected by Pd. Those glial cells help to repair and support the dopamine producing neurons. Neurotrophic means repair or build. So we have all got a repair kit in the very part of the brain that is affected by Pd.

Why don't you give it a try, it costs nothing and it works.

[Pauldmd in reply to JohnPepper]

Thank you for your response John. I am a great admirer of your accomplishments and dedication to helping others with PD. Unfortunately even walking at a slow pace for a short time incapacitates me for days. I am a firm believer in exercise and did so regularly for years until the back pain made it impossible. One of the reasons I am investigating the spinal cord stimulation is the hope that it will allow me to resume exercising.

Thanks for taking the time to answer my part and keep spreading your positive message.

[JohnPepper in reply to Pauldmd]

Thanks Paul. Let us all know how the Spinal Cord Stimulation goes>

Good luck!

[Shirleyam]

My husband just had a trial for a spinal cord stimulation by company called Stimwave Technologies. He will have permanent device put in on April 12. Web site for Stimwave is stimwave.com. I will let you know how he makes out.

[Pauldmd in reply to Shirleyam]

I have an appointment next Tuesday with a Stimwave provider. Did your husband get didn't relief from the trial procedure? Thank you so much for the reply.

[Shirleyam in reply to Pauldmd]

Yes he had relief. He has had the permanent implant. He is sore from procedure, but that gets better everyday. If you go though with implant be sure to follow restrictions. No reaching, bending or twisting during trial and six weeks after permanent. I will let you know how he progresses. Would be interested as to whether you get the Stimwave device.

[Pauldmd in reply to Shirleyam]

I have already met with a doctor who is doing the Stimwave. Just had a CT scan and I hope to do the trial next month. I appreciate your taking the time to write. I am curious, why did your husband or for the Stimwave rather than the conventional still this with the battery implanted as well? I am going in this direction because I have already had DBS surgery and didn't want another battery that had to be surgically replaced every few years. Thanks again and please extend my hopes and wishes for great success to your husband.

[Shirleyam in reply to Pauldmd]

We decided we didn't want battery pack implanted as well. Working great so far. I will keep you updated.

[Cbgs]

lol you're funny !

I haven't looked into spinal elec stim

But I use a "tens unit" at night on butt

It seems to help with the dyskinesia & restlessness

Be well

C!

[ngaponga71]

My husband had a simulator implanted a week ago for hermetic neuralgia following shingles. It has lessened his pain, tomorrow we up it a notch. I will let you know how it goes.

[ngaponga71]

It's herpedic neuralgia

[Pauldmd in reply to ngaponga71]

Please keep me posted on his progress. I hope he has a great result. I know how painful that can be. Thanks for your response.

[ngaponga71]

Stimulator for shingles seems to be working. Still recovering from surgery. Four weeks out now, been told eight weeks if the norm

[ngaponga71 in reply to ngaponga71]

Is the norm

[Pauldmd in reply to ngaponga71]

Thank you so much for the info. I am counting the days until I can get the trial. Been suffering with back pain daily since 1990. For me it's worse than the Parkinson's disease.

[Kevinbg]

My pain specialist has suggested spinal cord stimulation for me. I’m interested because of my pain and my extreme stiffness in the ankles and feet.