GI/stomach and PD pain

[MissRita]

good morning all.

Has anyone had issues with bowel obstruction from long term use of CL? Any information would be great, thx!

[JerryinSATX]

I solved my regularity issues with a combination of ground flax seed in my overnight oats and a serving of prunes. It worked so well I cut back my ground flax seed to every other day.

[MissRita in reply to JerryinSATX]

do you have the exact measurements for that? Thanks.

[JerryinSATX in reply to MissRita]

I started with 1 heaping Tablespoon of ground flaxseed* and a few ounces of prunes daily (which worked too well) and now use 1 level Tablespoon of flaxseed* every other day and my prunes every day.

Good luck

*in my overnight or hot oatmeal.

[DachshundFan in reply to JerryinSATX]

How long has this been working?

I find that mixing up the constipation remedies is better than taking the same stuff every day.

[JerryinSATX in reply to DachshundFan]

I’ve been experimenting with this combo for about 6 months, since I read about the effectiveness of ground flaxseed. Previously I had fairly good success with just daily prunes.

[park_bear]

Remedies for Parkinson's constipation

healthunlocked.com/cure-par...

[slimweiss]

My husband has terrible constipation issues. In the past magnesium oxide worked great but not any more. He eats prunes, takes miralax, Swiss kris, and stool softener but was so badly impacted that I thought I would have to take him to urgent care. His trainer said to try fleet enema and we did. It worked but almost too well. He has had one "accident" after another the entire day and has resorted to wearing depends all day long. I'm at the end of my rope and have come to realize just what that means.

[JJAJJ]

Try a spoonful of coconut oil in hot water and 1 sachet of Laxido first thing in the mornings.

[Dabaa]

I feel your pain. I was in hospital for a year with psych and PD symptoms, double-incontinent. What is fixing this for me is to heal the gut (still in process): took a 100 or 200 billion strength probiotic, together with kimchee, sauerkraut (a tablespoon with each main meal), kefir (far better than yoghurt), digestive enzymes, IM B12, benfotiamine. My next step will be to take artichoke extract which boosts bile. For me, not necessarily for your hubs of course, deficient bile, led to insufficient intrinsic factor which meant I couldn't absorb B12 from food which caused most of my issues, exacerbated by gadolinium poisoning from an MRI and microbiome destruction from colonoscopy prep. Research brain/gut axis. Not to mention the spikeprotein is snake venom: Dr. Ardis Show. Be encouraged, persevere, research. Positive change and improvement is definitely achievable.

[Todd-pw]

I’ve been on P E A complex for 3 months no more digestion problems along with many other improvements

[Astra7 in reply to Todd-pw]

pls tell us about the other improvements too.

[Todd-pw in reply to Astra7]

off periods not as severe or as long ,i can get up and move about whilst in a off state, managed to reduce my medication but the biggest improvement is my digestive system functioning miles better can eat a big meal and medication still works no more constipation generally feel alot better in every way. i have been taking it with thiamine also

[Todd-pw in reply to Todd-pw]

i did notice some improvement straight away but im in 3 months now and definitely noticing greater improvements in all my PD symptoms. i woild definitely recommend trying this supplement it did make me feel a little drowsy at first but now it doesnt. also just feel more chilled and not as anxious when in a off state dont feel the need to try and get out of ed when i wake in the night, i can remain comfortable and go back to sleep. so allround benefits espewcially when you can eat more and sleep more this alone is a major plus which will only help heal you in general.

[MissRita in reply to Todd-pw]

what is PEA complex?

[Todd-pw in reply to MissRita]

naturesbest.co.uk/joint-hea...

[Canddy in reply to MissRita]

Here is a scientific article on palmitolethanolamide (PEA):

ncbi.nlm.nih.gov/pmc/articl...

Looks promising

[Canddy in reply to Canddy]

Not necessarily specific to constipation though...

[Raphaekg]

Some people with PD (including myself) have severe gastroparesis, where gut transit time slow or even gets so bad that movement stops altogether. If you experience unexplained nausea, vomiting, and extreme stomach pain, that may be your problem. "Bowel obstruction" may be a false bowel obstruction, because your gastrointestinal system has temporarily stopped moving, so-called "paralytic ileus." Yes, you cannot empty your bowels, but it's not garden-variety constipation.

I have been hospitalized for paralytic ileus, and it is extremely painful. Living with extremely prolonged gut transit time (gastroparesis) is much more complicated than treating constipation. Note carefully: If this is your problem, a high fiber diet will make symptoms worse. I often have to liquify my food in order to eat fruits and vegetables. I am a lifetime vegetarian, but can no longer eat raw vegetables.

I strongly recommend that you see a gastroenterologist who has expertise in GI motility problems. Please take the experience and advice of others who are dealing with regular PD-related constipation with a large "grain of salt."

[MissRita in reply to Raphaekg]

YesI have taken a lot of it with a grain of salt (not to say, I don’t appreciate all the wonderful advice for constipation, because I honestly do) only because as you stated so eloquently, this is a totally different type of thing when you’ve got Gastro paresis. My issue has been I can’t seem to find the right foods liquefied, or not to be able to eat without having it stuck in my gut, or between the sternum and the gut and let me tell you I get so scared because I’m thinking it’s not gonna be able to push down and I’m gonna vomit it back up which I have done on many occasions. Additionally, many times when it does get stuck in my stomach I have to walk and walk and walk because if I don’t, I’m not able to move it to the bowel. Further, if I don’t walk or do something to move around to push the food down, I get extremely panicked and very very anxious. It’s a scary feeling because additionally, I become tremors and spastic and it looks like I’m having a seizure and yet and you’ll love this one when this has happened to me and I’ve actually been in my car, I actually drive fine! It’s the weirdest thing! I always tell my doctors that my brain is gaslighting my body or vice versa lol

I have also lost a lot of weight and that scares me as well. Have you lost a lot of weight with your history?

[Raphaekg in reply to MissRita]

Yes, I have dangerously low weight. There is a drug I have JUST heard about called Motegrity. I have not yet started taking it but will soon try it, It has changed the life of someone I know who had such severe gastroparesis that she had to have a feeding tube. Motegrity is specifically a "prokinetic" designed to help improve gut movement. I hope you can try it and that it helps!

[MissRita in reply to Raphaekg]

oh wow! I’ll look into it! I just signed up with a new Gastro and I’m setting up a test next month.

I am worried about the loss of weight for sure, but I’m hoping with either some new medication and a new test that hopefully I can counteract that a little bit.

[Fefe09 in reply to MissRita]

do you still have your gallbladder?

[MissRita]

that’s interesting. Every time I’ve looked up any of the side effects of C/L they do talk about constipation quite a bit. I think it’s like everything else in terms of how everybody is different and everyone of us is going to react differently to the same meds. I’m super conscious about what I eat too but it’s getting to the point where I can’t eat a lot so it’s very concerning.

[macmiddle]

I love flax seeds and think they definitely help and dont mind the taste either. I also mix in chia seeds often too.

However I think the best thing to use for bowel, GI, digestive issues,constipation in PD that is head a shoulders above everything else, is infrared laser. 3 x a week, 2o minutes each treatment, that you do yourself at home with a little battery powered device called the PDCare. It's painless and simple to use. Have even been able to reduce medication. Approved for PD. Read more at the symbyx biome website.