My husband has had a cervical spinal cord injury for around 10 years that adversely affects his mobility a lot and also his hand function. He walks with aids and is very slow and needs a lot of care as there is much he cannot do for himself.
Recently his mobility has deteriorated and after many consultant visits the Neurologist has decided he may have PD. He has a lot of dizziness and this is the symptom that led us to the consultants for help after GP ruled all the simple things out. He also has some facial masking, some drooling, and some vivid dreaming and his voice has become a little slurred. His memory is also not what it used to be. He has had 3 falls in the last 6 weeks though luckily no serious consequences. He is 73.
The plan is to start him on a low dosage of Levodopa (this coming week) and increase gradually in the hope we see some improvement which will confirm PD diagnosis. The consultant said it's a hard one as his mobility issues mask some symptoms and he has no tremors - though he does sometimes get spasms because of his injured spinal cord .
We have no idea what to expect and a lot of the advice I am seeing centres around adequate exercise etc which is obviously difficult for him though we do exercises every day and he has an electric bike that he can use with his wheelchair. He also has weekly sessions with a Neuro physio who also treats people with PD.
I guess I am hoping for any helpful insights or advice at this stage or if there is anyone here who has a combination of these two conditions and can offer any experience. At this stage we aren't sure what to wish for. He doesn't want PD but the idea that the meds might make him feel better is appealing. If the meds don't work and they have ruled out all other possibilities they have no futher suggestions of treatment.
Sorry for the long post and thanks for listening
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