10th April was the worst day of my 21 years so far. Mum had recently been to the doctors with uncomfortable pains round her belly and back. She was sent for an endoscopy and CT scans. 2 days after the CT scan she got a phone call from a doctor at Treliske Hospital in Truro to say he has some news and he strongly suggests she take someone with her. He confirmed that she had inoperable PC on the tail and it was wrapped around the main blood vessels. The scans would be shown to Derriford in Plymouth for a surgeons opinion but we wouldnt have to go all the way there to be told the same news. However...mum got an appointment through for derriford which was a bit of a shock and suppose got her hopes up. This was then cancelled for an unknown reason the day before and rearranged for five days later. This one was cancelled THAT MORNING. A specialist nurse from GI rang her to say she does not know why an appointment was made because she did not have to go..which we were told in the first place. So 2 weeks were wasted.
Three days ago was her oncology appointment at Treliske where we learnt the tumour was 3.5cm, was still inoperable and the only treatment would be palliative chemo and possibly radio if she responded well. Mum chose to have it only once a week for 3 weeks on/ 1 off for 12 weeks due to side effects. This was all agreed and mum was booked in for pre appointment next friday. However...they can not start treatment until they confirm the blood markers from blood tests to confirm type of tumor. Doc said he was 95% sure it's what he thinks and has agreed the best treatment. Well..blood results came back yesterday and the markers are not as high as what was thought so they are now wanting mum to go to Derriford for a biopsy..taking up more time. First though she has to have another blood test at her GPs. They will not book it in for mum because they have to have it in writing from oncology!!!!! So we rang oncology who will not be able to respond till monday. it is friday today.
Feel like we are being messed around. Its been 6 weeks now and nothing has been done. Mum is in awful pain constantly with her back and stomach and can not eat much. She is taking co-dydramol 4 times a day and paracetamol plus numerous laxatives and omeprizole. Has anyone had any luck with health supplements as I am trying those to? Will do anything to make her feel better.