I have Scheuermann’s Kyphosis and am seeing a... - Pain Concern

Pain Concern

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I have Scheuermann’s Kyphosis and am seeing a pain specialist about have a nerve stimulator placed for extreme back pain advice anyone?

MBG57 profile image
8 Replies

I need guidance, my spine specialist wants me to try an implanted nerve stimulator to help with my level 8-10 pain instead of surgery to place rods and screws in my spine. Has anyone done either? Any info would be greatly appreciated.

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MBG57 profile image
MBG57
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8 Replies

I had a spinal cord stimulator for my extreme chronic pain n etc.

Worked a year,then it didnt for my pain,plus problems started n not worth keeping .

I wish i had looked into other options first before i did it.

Everyone is different so..i wish u the best with whatever decision u make.

Saz2603 profile image
Saz2603

I had an assessment to have one of these fitted but they said it wouldn't help me. I was also told that it could work for a short space of time but then would probably stop working. Hope it works for you x

Saz2603 profile image
Saz2603

I have also had a spinal fusion at the base of my spine, which includes rods, screws and metal framework to leep my spine stable but that made me worse.x

LesE62 profile image
LesE62 in reply toSaz2603

Hi Saz, I too had L4/5 bilateral decompression and spinal fusion 3 years ago and I am worse now. I also am waiting for appt for another surgeon as my spinal cons has discovered problems with my SI joints. Wondering if that was most of the issue with my back before the surgery now...

Teanna profile image
Teanna

Hi,

I also had this machine, it worked for a month but it started to where off, also I was travelling at the time, (Thailand) but the electrical wires are so low, the voltage would turn up my machine without me touching the remote, it was like electric shocks.

Good luck

Teanna

Bazer-Sci profile image
Bazer-Sci

I was offered one and went in for a trial implantation (where the put the wires in for a week and use an external electrical source) but my spinal spacing was tight and they could not get the wires in. Hence I did not have it and continued with morphine etc. I have been told since it's impossible to have an MRI with the wires installed so a it seems a bit of a end to future investigations so I would check if the is really the case. I've had fusions in my lower back and they went well but still some pain. I expect your would be on the thorassic region which is a different op than mine with different benefits and problems. Hope you get things sorted.

Barry

nevro1 profile image
nevro1

Hi,

I'm going to buck the trend here as I had spinal-chord stimulator fitted over 10yr ago. I am one of the few who trialed a new machine from,'NEVRO' and this was accessed through, 'INPUT' at St Thomas's hospital in London.

10yrs on and I am still getting 70%+ pain relief. For me it has dramatically changed my life for the better.

Another reply mentioned not being able to have an MRI.....yes for me that is true because in 2010 I believe there was not the capability to build one that was MRI compatable.

Now with technological advances I believe this is possible with the newer versions. My battery life is coming to and end and again I believe 'NEVRO' have an upgrade that is MRI compatable so new battery+upgrade=MRI safe.

For some it is a difficult choice to have some hardware sewn inside of you. Not for me...as I'm sure you will contemplate almost anything to stop the pain and be, 'Normal'... :-)

I'll admit it did take almost 6-9 months for it to become norm and apart from re-charging I never really think about it now.........................one of the best life choices I've made.

Good luck with everything.

Nevro1

Mollycooper11 profile image
Mollycooper11 in reply tonevro1

My mother also has a Nevro neuro modulator and it has helped a lot. She has had 2 spinal fusions and is potentially looking at a third but this has definitely made a positive impact for her pain.

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