Kyphosis/scoliosis

[Mandylaw]

I lots of pain back hips knee I am on 3200 mg of gabapentin 2x 500 naproxen’s 8 parseamol sorry can’t spell xxx

[cyberbarn]

Hi Mandy,

I am sorry to hear you are in pain like that. Did they give you any indication as to why you have Kyphoscoliosis? I hope the naproxin helps. Make sure you take your PPIs to protect your stomach as you don't want stomach trouble on top of everything else!

[Mandylaw in reply to cyberbarn]

No I don’t think so think I had it since I was young but no noticed till I was bout 18 went saw a physio but the says I had extra bones n my shoulder an say I would need op to remove the still waitin on that app that never came lol fast forward bout 18years later and this is where I am lol naproxen’s don’t help non of the meds help xxx

[cyberbarn in reply to Mandylaw]

It sounds like you have 'fallen through the cracks'.

The reason why I asked is that there is something called hypermobility that can cause scoliosis. There are different types of it, but it can also cause other types of pain in your body too.

[Mandylaw in reply to cyberbarn]

My friend says bout hyper mobility the other day I don’t really understand how it all works nobody explains it to me so I can understand I have a learning disability I tryin to contact the receptionist at the hospital for the to send me out information bout pros and con of having surgery and like recovery and that but she say I would have to wait till the appointment I am no good at retaining information so that not good for me xxx

[cyberbarn in reply to Mandylaw]

This website might help explain hypermobility a little better:

hypermobility.org/what-are-...

Hospitals and GPs have a duty to meet the needs of people with learning disabilities so maybe you or your mum could ask if a learning disability nurse could speak to you and maybe come with you to appointments. Would that help?

[Mandylaw in reply to cyberbarn]

Yeah I had leaning disability nurse come to hospital with me before but never heard from hir again

[cyberbarn in reply to Mandylaw]

That's a shame. how long ago was that? Maybe you could try again?

[Mandylaw in reply to cyberbarn]

1 n half years ago I think last time a was a surgeon

[LungLou]

Hi Mandy. I am new to this forum but saw your old post. I have severe kyphosis & scoliosis. How are you?