New Here, Advice Please? Undiagnosed Abdominal Pain

[Serendipity_]

Hi, so I'm new here. I just turned sixteen recently, but since I was roughly 12 to 13 I've had terrible on and off abdominal pain that gets worse/only really shows up during ovulation and my period. It gets so bad I have to lay on the floor and just wait it out, and it makes me throw up. It interrupts my daily life whenever my pain occurs in school and I can't stand living like this. My Mom took me to the OB/GYN when I was 14 and they did an Ultrasound; nothing. I was put on birth control and was told it should help; it didn't and my periods became somewhat irregular with random bleeding. I took it for roughly a year until I stopped. I haven't gone back in yet. My primary care doctor then referred me to a GI. My GI determined that I was constipated and we did a system flush, but it didn't work correctly so I've had at least 4 X-Rays done and we finally flushed my system for good. She told me that in 2 to 3 months my pain should stop. It didn't and my GI put me on IBS prescription pills, and it made my pain worse. We tried another brand, but it didn't really have an effect. We were desperate for results and even tried Peppermint pills as my GI said it helped with IBS. My primary care doctor had me do a blood test and everything came back normal. My GI told us that my pain could be Crohn's Disease, a form of Cancer, IBS, or H. Pylori. She said there were some other things it could be, but she didn't feel like mentioning them. My Mom is currently searching for a new GI, but regarding my Mother; I'd like to mention that she has Endometriosis. I don't think it's important though considering if I had it, it probably would've showed on the Ultrasound. I'm sorry this is so long, I just feel so lost and I can't find a place to talk about this. Does anyone have any ideas or anything? Places to talk about this if I'm not in the right place, anything please?

[Chillier]

Hi. I'm really sorry to hear about your problems and hope I can give a little advice.

Firstly join the endometriosis group on here as these symptoms do sound like endo. You will see that many of us have been fobbed off with IBS and other issues (we may also have those too as in your case) but it stops them looking further.

I would see if your bowel calms down then see a gynecologist. Endo doesn't show up on scans. I had loads of different scans and repeated scans. They could see something was wrong with my ovary but not the endometriosis.

I have stage 3 endo, other gynaecological problems and IBS. Along with a load of food intolerances which don't help.

I hope you feel better soon and it all clears up but if not don't give up, the sooner endo is found the easier it can be to manage.

Best wishes. Xxx

[MamaDeb67]

Hello, Serendipity, the fact that the pain shows up during your ovulation and then your period is very much similar to my own experience 30 + years ago. I never knew what to do about it and figured that it was normal - this was before doctors knew much about Endometriosis - there were never any ads about it either, so I had no point of reference. I ended up needing to have 2 Laparotomies and finally a complete hysterectomy within 14 months time to get my life back - that was when I was 24 yrs old and I knew that I would be adopting kids, never having any of my own. I think if I had wanted to give birth it might have been a very difficult and expensive time, so things worked out the best for me. The previous post seems right on target with what I would suggest - search for a very good Gynecologist (preferably female) who will take you seriously. I am not up on the latest treatments, but do your research and reach out to others to see if you can get information about treatments from others. You’re so young - I would hope that there can be some relief out there for you...

[Aaaaa- in reply to MamaDeb67]

My daughter had same systems. Turned out to be orange size endometrial cyst on both ovaries.

[Carol53]

Hi have they tested for other bowl problems I have diverticulitis it was never seen on x-ray or MRI or scan just a suggestion treated me for IBS didn't work I get bad constipation or the opposite don't know if I've helped hope you get it sorted but pain there for a reason try out doctor who looks at endometriosis and things like that to can't remember what there called Brian freeze it could be coming from the front not the bowl not helped much but look at other reasons or your doctor should hope you have I good day carol