As some of you know I’m currently in hospital with problems with my stomach and I also have long standing pain in my hip
The pains are getting worse and not managed at all and the ward is short staffed my medication is often very late
My consultant just said they are going to get the acute pain team to come and see me
Has anyone had this? Are they any good? What type of pain relief can/do they offer?
Hey u, I was supposed to msg u hours ago, but anyway when you see the pain people you need to tell them as much as you can, about the pain and discomfort and how it affects you and your everyday living. Meditation wise you might have try different one's at different dosages to see what works best for you. Hope this helps if u wanna ask anything feel free xx 😁😁
What kind of medication though I don’t get what they can offer that the others can’t just a little confused I guess xx
Sorry baby, its been one of those days Im nearly in the same boat as you with the effing hip thing along with my back and other problems the pain relief meds that I take are : Tramulief, solpodol, Amitriptyline and pregabalin. They do relive a bit pain of pain, but hey no one's perfect 😄 so when you see the pain people you could maybe suggest trying these medications but remember everyone's different and react differently to certain meds. if you've already seen them and I'm to late I'm so sorry I didn't send this msg sooner xx😁
No idea what the first two are lol and second two I can’t take they make me crazy awful drugs lol thank you xx
Hope you feel better soon xx
Tramadol and cocodamol just realised. Just came off tramadol last year after then years so won’t go back on that and I already have cocodamol x
Oh just thought I'd offer a suggestion I know what it's like when you feel like nothings working I'm usually ready to put my head through a brick wall 😁
oh I didn't mean to refer to you as baby, I meant babs so don't worry I'm not creepy xx
Haha it’s ok I like being called baby 😂😂
Yeah so I’m on cocodamol (they let me back on it) oramorph and clonzipam but they wanna put me on something a little strong as each day is getting worse now and further away from now😔
Hope your ok Hun x
I feel for you, I really do, waking up every day and in constant pain, ain't life just great!!! I'm trying to to stay from the morphine really don't wanna go down that road 🤪
You mean like straight morphine lol I don’t find it does a lot tbh lol
I think I might mean morphine based, but either way I'm staying away from it I've got issues as it is and that could become another, so I'm just gunna smoke weed for the rest of my days 🙃
I wish it was legal here, it’s the best painkiller there is
It's not legal here either,
Where are you?
South Yorkshire x
Yeah I live in the UK to lol , just impossible to get here lol
I thought you might, so where are you x
East Sussex x
Heard it's nice round there x
Beautiful I love living right on the sea ( literally 2 second from my house) just a shame I can’t enjoy it anymore lol
That's a shame, have you not got anyone to push you round in a chair or would say you would definitely be entitled to a scooter x
No I’m not I’m in the medium rare of mobility I have a wheelchair but it’s all stones so I can’t get anywhere near it really lol and sitting is so painful
I hear you, its really not fair that you have to live like this, I'm glad I joined this forum and get to chat to you and the others xx sometimes I feel really isolated. I don't know anyone with similar condition apart from here xx
Me either lol. Yeah it’s nice to have on here as my poor partner gets the brunt of it and it’s not fair on him all the time to moan about this.
Life is unfair and on a day like today we are all reminded of it in a big way
At least we are here though
Yeah tell me about it, but I can still get around I just look like a hoblin penguin on acid with a stick xx 🤣🤣
😂😂😂 best image ever!!
🐧🐧🐧
Just been told them are going to try fentanyl patches 🤷♀️
What's that?
Fentanyl on a patch for pain x
Yeah, actually that's quite a self explanertary xx 😁
😂😂 thank you for always making me laugh (although it hurts lol)
Ur very welcome I aim to please 😋😋
hey.. u still there?
Yeah hun x
How's it goin,did u get anyone to help u
Nope lol x
Sorry to hear that,is there anything else u can do
I’m guessing they will come tomorrow. I’m gunna ask about the epidural pain thing people have other than that I don’t know they can give I’ve got tried
Hope u have better luck tomorrow.
If they bother, this hospital is a joke and I’m about ready to leave excruciating pain or not tbh lol 🤷♀️
I know being in the hospital sucks BUT if ya leave u may set ur progress back
I can’t actually leave lol but if they don’t pull their finger out I will put all my complaints in now rather that when I leave and that won’t be good for them sorry just very angry and want some actual help lol
I get it,n been in ur same shoes.hang in there n I hope u have a decent evening.I'll check in with ya tomorrow
It’s 2 o’clock in the morning here lol thank you x
What pain meds are you taking now and what have you been on that's not working?
I was on tramadol Zomorph oramorph cocodamol cloneizpam (stopped the other meds last year my choice) . I’m now on codeine (because tpn has damaged my liver they took me off cocodamol) oramorph and cloneizpam and they were ok at home still in a lot of bed but I’m bedbound anyway , I now have a lot of extra pain with my stomach so these aren’t doing the job for everything so they want them to come see me to see what else I can go on . I won’t go back on zomorph or tramadol again though
It’s not that they aren’t working it’s that I’m in a lot more pain now
Did you have any to suggest??
Oxycodone is much better absorbed through the gastrointestinal tract then morphine and may be a better drug for you. If you are having abdominal pain injectable narcotics such as Dilaudid may work better. This can be be given orally as well. Sounds like you need a complete GI work up as well. Codeine has relatively poor efficacy compared to Dilaudid and oxycodone. Best of luck
Oh no that’s just so bad Itsa. Hope the pain team comes up with something. I have had lots of spinal injections and sometimes they help. Also had 2 denervations, one for my back (3levels) and 1 for the si joint. They were most unpleasant but the si joint one has really helped. Just hope they come up with something good soon. Xx
I can’t have those steroid injections makes me so into a septic shock . What’s a denervation ? And a si joint?
Sorry lol
Well they are yet to come up and see me this hospital is a lot of 😡 so I wouldn’t be surprised if they don’t come until next week tbh lol
Si joint is the joint that connects the sacrum to the pelvis. Denervation is where they burn the nerve ends.
I bet they will come today, just remind the staff a few times lol
Reminding the staff does nothing half the time I don’t get my medication for hours and all the HCAs don’t talk English you ask them for something or to do something the nod smile and close the door lol
Keep pestering them. It sounds horrific though, whereabouts are you?
South east. They are so short staffed I don’t want to keep pestering it doesn’t get passed to them so it’s pointless lol
2 nurses for 21 patients on a gastro ward with 8 side rooms so you can imagine how busy they are with drips etc
Sounds far too understaffed.
That’s an understatement lol
I know, it’s completely nuts. Complain to the health board of the hospital while you are there or something like that, from your bed. If nobody complains nothing will change. It’s been fine where I live. I feel for you xx
Already have complained to PALS all the hospitals are short staffed nothing they can do
That sucks
I get better care than most coz my mum works in the hospital and most staff know her. Just the sad state of the NHS unfortunately
Sad, not had the same problem up here.
Yes well unfortunately we don’t
How are you today? Did the pain management team come and see you?
Worse and no not been seen yet but no surprise tbh lol
Fingers crossed they’ll be there soon.
They won’t be here until Monday now I’ve been told they are to busy , as I said this hospital isn’t great. At the weekend we don’t have doctors on the ward just one on call main one that works in A+E and only comes around if there is an emergency
Oh man that’s rubbish. Hope you can manage till then.
They told me doctor to give me fentanyl patches so will see if they work
Fingers crossed.
septic shockk - lol that isn't possible.
What is your problem ? I’m pretty sure all the consultants and doctors in the hospital are more qualified than you. Stop commenting on my posts. Go be awful somewhere else please
Have u tried oxycodone? It’s / steps up from morphine and a step down from fentanyl! Might Be Worth trying
No only ever heard awful things about it and my actual gp doesn’t deal with things like that only my main pain doctor and they pain team here I’ve never heard of anyone being put on it I asked my mum and she works here
My daughter 17, was on it for a couple of years with no problems at all
Everyone is different
Agreed but it’s not all bad you may have heard bad things about it and it is one of the most abused drugs on the market but when taken properly it has been a god send for my daughter. Was prescribed via pain management.
Yeah I don’t want to take a drug like that it’s not for me but thank you for the suggestion also you can’t just ask for whatever opites you want here lol
I did not know that this group is mostly in The UK! Im in the USA. Two yrs ago it all started with sciatica right side, could not walk. Orthopedist would not prescribe narcotics, i begged him. Just anti inflammatory MELIXICAM which put me in hospital after 2 mo of it, with kidney failure. In order to get what helps i.e, oxy or any opoid, got to go to emergency room. Get misly 8 day supply. Now 2 yrs later again. Different doctors, finally getting Tramadol and muscle relaxer and epidural steroid. First dr. Did not take me seriously, did not take MRI. Now, Getting a series of 3 epidurals, 3 to 4 weeks apart. First one started working after two weeks, still some pain, manageable. I found that last year the 3x weekly phys therapy helped and will return when i feel stronger. Good luck 👍 it seems in the UK they are not as paranoid about prescribing narcotics as they are here. Have to personally see Dr. Every 30 days to refill my prescription! Have you tried CBD OIL? I am thinking of it. No prescription bc its not FDA approved but can get it but without the THC which is the „high“ chemical. ❤️
CBD doesn’t do anything unfortunately and the oil doesn’t agree with me tried vaping but again does nothing. I’ve had all things like that my pain is manageable at home I have careers etc it’s just here as I have extra pain and I’m already having oramorph I don’t need more opites lol . Can’t take anti inflammatory drugs they make me very ill also
I keep hearing about the epidurals but for now that’s not a solution to my problem in hospital.
Glad you found things to make you better x
I dont know yet how longlasting epidurals will be but am giving it a try......surgery would be last resort. Tks for your input. Feel better!
How long lasting have they been before as in how long do they last? I am interested for when I get out and go see my own proper pain doctor about my hip
Epidurals are just spinal injections. You mentioned you cannot have them as it makes you go into shock. The lowest one I have had was a caudal injection which might possibly help you?
Epidurals are different to the steroid injections I can’t have steroids. I’ve had an epidural before when I had my child obviously they are slightly different that’s why I asked How long they last?
No they are not. Epidurals for childbirth are different. I have had many spinal injections and two of them were epidurals, also referred to as epidural steroid or epidural pain relieving injections. (Unless there is another kind of epidural I am not aware of)
I wouldn’t have the steroid one I can’t have cortisol in my system I already have to much myself
I remember you saying you can’t have steroids. But as I said I am not aware of another epidural injection other than the childbirth one. Hope there is one for you.
Surely they can do that I’ve heard of them being used for pain blocking and mine is in my hip so it would work
Definitely worth looking into. Wonder if denervation might help you?
Never talked about it or heard about it so probably not something I would/could have
definately give cbd a try. It’s done amazing for me.
Doesn’t work for me also I’m in hospital not at home
I guess i missed some mail....why u in hospital poor u?
Severe problems with my stomach
Hope they can help u soon....
Been here a month so far and not really got anywhere except worse lol
Here they try to get you out of hospital fast.....ready or not. Just hope you get the best of care.
Thanks I’m fed up just want to go home to my little boy
Don't forget a simple solution is to up the morphine 25-50% a day. They need to rationalise the medication. So if someone is on zomorph, and co-codamol and tramadol for breakthrough, it would make sense to add the zomorph and co/codamol together, and then keep tramadol. They could convert Oxycontin and OxyNorm instead. The fentanyl patches take a few days to work. There are a few other strategies - PCA, push a button and it gives a small amount of morphine, or fentanyl intravenously. Then you can't press for 5 mins or so. Lastly they could give you subcut injections say every 4 hours, usually in the region of 5-15mg morphine. Works within 10-20 mins and 4 -6 hours pain relief. Usually double or triple
Update on pain management. 
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