Hi there to you all.
I have lived with full body CRPS for 20yrs , and all the associate extreme pain and mental health issues that goes along with it.
I now tutor courses for people with chronic pain and mental health linked to it.
I have attended pain clinics numerous times, and while the people there are very knowledgeable academically speaking they don't have the life experiences , in my opinion this is why they don't hold much meaning.
My issue is that when some says I know how you feel , and clearly doesn't it becomes patronising , most of the time thats not their intention , however if you have the chronic condition it how it makes you feel. People with chronic pain will respond to someone who can show real empathy, and can general say I know how you feel and in most cases do actually know .
This is why when I volunteer people can relate to me and I to them.
So if i explain management strategies ,relaxation etc and put across how they work for me, or usually they witness me using some techniques at times when Im struggling through a 3 hour course, it is easier for them to understand . Myself and our other tutors deliver what I believe are great services, that do work if delivered correctly , by the correct people.
Hope this all makes sense to you all, Im sure most of you will be able to relate.
Be well everyone stay strong