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Pain Concern
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Oesophagitis and gastritis pain

When I eat it burns and burns all in between my shoulder blades and all through down my back. Antacids and Pips aren't helping. Nor Gaviscon. I cry a lot. Does anyone else have such pain. It can last for hours and is worse at night

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Contact your GP urgently. Every time you feel a burning sensation part of your oesophagus is being damaged. The burning pain you feel is a warning that something is wrong, and needs to be put right. Omeprazole, I have found is a good form of relief, but it can take a couple of days to build up a resistance to the burning. To assist you when going to sleep, do not lay flat, always use three or more pillows and when you go to bed, try to remain in a sitting position. The only thing I will say about the omeprazole is, that I have found, the make up of Dr Reddy's formula for them does not work for me, so you may have to try a few different brands. Also, I would ask my GP for a referral to a GI (Gastro-Intestinal) Consultant to find out what and why you have the heartburn, and indeed, what damage has it already caused? Good luck.

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Thankyou Freedman. I am going to ask to see a gatroenterkogist as the esomaprazole, ranatadine etc does nothing. I also have a hiatus hernia which they won't operate on. Thankyou for replying to my post

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I can sympathize with you. I'm on ranitide morn & night & nexium every second day. I also have a hernia. I have same pains as you plus the heartburn. Nearly every night I find myself swigging gavisgon or chewing rennies. My teeth are a mess. Every second year I go through seeing the specialist & then off for tube down the throat (& up the other end for good measure! 😁 . Then back to specialist who tells me that the condition of my oesophagus has deteriorated. Then I go home & take the same meds & wait 2yrs for my next useless appointment/exploration. I sincerely hope you have a better outcome. xx

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Hi RobbieT thanks for that. Yes....useless appointments I agree. I've had this for 4 years and no-one seems to know how to heal it as your meds like mine don't seem to be helping. It's very painful and i often can't go out, or go out in pain. The only respite I do get is night time when I take my sleeping tablets. I'm 70 this year. I pray for help and cry a lot with burning pain. I do so empathise with you and it was so nice of you to reply. I live in the UK. Linda

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It's all so frustrating. Now they want to take me off fentanyl patch (fibromyalgia, sciatica, bulging disc, arthritis in spine) but have nothing to offer in it's place. I've been through so many meds. Now the government is stopping fentanyl because of addiction based on USA stats. These stats of course are mainly based on illegal use. I'm 63yrs & live in Australia. At least here, Linda, we can share & vent our pain & frustration. xx

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Oh poor you. You do suffer a lot. I have slow bowel transit to and take tonnes of laxatives but they hardly work. Hoping to get a follow up appointment with colonoscopy registrar as it's all backed up again despite eating healthy. My GP gave me a pain med patch but it never helped with the terrible burning all through on eating. It is all sooo frustrating I agree. I wish there was another patch they could try you on. Yes at least this site helps us to chat to people with health issues and vent frustration. You must be in a lot of pain too. So nice to hear from you all the way in Ozzie land!!!

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Yes it's the illegal use of pain killers but if the patch was helping you it's disgusting they don't have another to give you. No pain meds help me so I don't take them...waste of time and half don't do the stomach any favours Linda

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I sometimes wonder if any of these GPs & specialists have ever suffered any illness or pain!! I'm also on meds for anxiety/depression. Any wonder!!!! I suppose one day they'll stop them too. Xx

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Hi it's good to talk to you. I am on antidepressants because of 4 years of this pain. No I don't think sometimes...a lot of times...the GPS and consultants have a clue what being in this horrendous pain is like. Nothing is healing me. I took an overdose twice in the last years because of it. I also have bowel problems so it's the whole of my digestive tract. There are many days I just don't want to eat. I have a dog and 2 cats and two grown children living elsewhere. I get a bit agrophobic and if I've been out I just want to get home due to pain. Thanks Robbie for sharing. You are not alone. Linda

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Hi Linda. I'm mildly agrophobic too!!

My anxiety/depression med is Endep. Knocks me out of a night (depending on my pain level). The fibromyalgia gives me restless legs - i sit up, lay down, toss, tutn, blanket on, blanket off etc If this happens i usually have to resort to diazapam too. I also usually take one if I really have to leave the house.

But on a positive note my friend drove me to an essential oil workshop yesterday where I made myself a calming mixture of lavender, ylang ylang, geranium, cedarwood & jojoba. (With guidance from an expert, of course.) Not sure if it will actually work but going out & mixing with a few other women for a couple of hours did me the world of good!

The young girl who organised it actually went & got a cushion & popped it behind my back. Kindness is a good 'healer' too!!!

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Hi it's funny but I was diagnosed with fibromyalgia and restless legs years ago too!! I don't sleep so take Clonoazepam. Zopiclone and Phenergan at night. They knock me out but I still often wake at 1, or 4 then just try to sleep but it's not a deep sleep. It takes a lot to knock me out. If I get up at 6 or 6.30 I have my cereal then go back to bed for hopefully another hour. But like you I take Diazepam and felt all panicky this morning (I guess cos I know pain lies ahead on eating) and I never used to need them. You had a lovely trip out mixing all those oils and meeting friends. Sadly I only have a couple of friends and only people I see at church. That gets me out but I had to leave early yesterday as the burning was so bad and I just wanted to get home. The weather here at present is miserable so that doesn't help. Mostly I just sit and watch t.v. or lie down when I get such pain on eating or feeling anxious. My dear dog is so good and she's content to lie down all day until I take her out. I've never heard of that med you take which knocks you out. What's the full name of it? Perhaps we don't have it in the UK!!

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I've got one lovely friend who is the only one who never gave up on me. Sadly she lost her husband 2yrs ago & her mum last Christmas so she is living life to the fullest (in a good way) & has made many friends along the way, so I don't get to see her as much as I'd like. I feel so frustrated as I used to do all that stuff with her (going to markets, writers festivals, long red wines & dvd nights etc)

The Endep med I take is amitriptyline. It's an antidepressant. I take 60mg.

Like you I usually sit in my chair watching tv or lay on bed reading. But I did go to the chemist by myself last week & last Friday I drove down to look at the ocean. Bloody painful but totally worth it.

Could one of the church ladies at least take you for a short drive? Robbiexx

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Yes kindness helps a lot. Then Christian women I know from church are kind but none of them ring me to see how I am or ask me out for a coffee. I do get very lonely and never suffered agrophobic before. It could be a mixture of the drugs that have affected me Linda

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I never even thought it might be the meds making me less sure of myself out in the 'real' world. I see a psychologist who taught me how to tap into acupunture points in order to calm myself. You can find articles & directives on it online. I've forgotten the technical name for it - but 'tapping for anxiety' or something similiar should bring it up. It doesn't always help but I still keep on with it. Rob xx

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Yep as a long term sufferer with acid it's imperative to find out what's causing this reflux, I would imagine that you'll be given a camera down your throat, I'm on omeprazole now for the rest of my life, the acid can cause many problems including an ulcer, you'd get a pain that comes on in waves and would slightly go away when you burp, and possibly feel hungry all the time, avoid drinking milk as this curdles in the stomach, you think it will calm the acid down but it does the opposite, I have had numerous problems with my stomach over the years,the acid is intolerable and can cause problems, I sympathise with how your feeling and I know its not pleasant, also do not mix over the counter remedies with each other, I found gaviscon and the peptic liquids did not solve my problems, however just a word of caution if you are placed onto omeprazole for a long period of time just keep an eye on your vitamin B12 as this tablet along with other medicines can affect how your the acids react in your stomach, it's a small price to pay to relieve you from the relentless burning and discomfort, hopefully you'll be able to eat and enjoy life a little better, don't smoke, and avoid alcohol as this is causes the stomach to become irritated, hopefully you'll feel better soon, good luck.

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Hello thankyou so much for your kind reply. Yes I've had an endoscope. But mine burns all in between my shoulders and all down my back. I don't get heartburn or burping. I agree with you about milk and not smoking. My pain can go on for hours and I'm hoping to see a gastroenterlogist as the ranatadine and esomaprazole doesn't stop it. I've had oesophagitis and gastritis for 4 years or more. I dread eating ha ha !!

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Hi your friend sounds nice. It is frustrating when you used to do all those things. You must live quite near the ocean. No none of my ladies would ever dream of asking me out. They all have other friends and busy full lives.

Do you sleep well on the Amitryptiline? At least you got out. I do have to get my shopping and walk the dog...as you said...bloody painful. I'm supposed to be going to a lunch club for dinner first time today. They eat at 12 ish but I'm dreading it...the eating part. Also I've become quite withdrawn and when in such burning pain I find it hard to smile and be chatty. Now my bowels are backing up again and all I'm getting again is by pass diarrhoea and when they did my colonoscopy they removed over a litre as the prep solution didn't work. I'm waiting for a follow up appointment. It's raining here today...no sunshine!!!

I just wondered if you do sleep right through on the Amitryptiline?,?Linda

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Good advice re the B12. Never knew - so thanks for that.

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I have recently had this after over a year of a 'sore throat' and not realising that it was 'silent reflux'.

The pain you are feeling in that area could be because the nerves that report back to our brain as to where the pain is sometimes do a poor job. that is it tells the brain that the pain it between our shoulder blades when in fact it is being caused by something in our oesophagus.

You have probably already done this but keep a food diary and a symptom diary and try to see what it is that is causing it. It will be something different for everyone so don't just go on what others say. For sleeping, try raising the hight of the head of the bed by putting it on blocks. Also try not to eat in the evening, and I take it you are using Gaviscon? There are different varieties and I found that one worked better for me than the others. The same with PPIs, there are different kinds and there might be another one that works better for you. And eating small amounts at a time works for some people.

The last thing, are you or were you hyper mobile? Have you been evaluated for a connective tissue disorder Ehlers-Danlos? This sort of problem is often found in EDS and many people go for years not realising they have this.

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No I'm not hyper mobile. I see what you mean about nerve endings. I'll keep a diary. I also have dumping syndrome so juggling the food is difficult as I also have slow bowel transit!! What a life eh!! Gaviscon doesn't help much but I take it. I have to have a low fat diet as I've had pancreatitis. It's hard to know what to eat if I go out for a meal as a lot of vegan stuff I like has cheese in it and a lot of places now serve veg braised in oil. I used to love my food and could eat anything. It does get me quite down a lot but hey ho I just have to adapt best I can. I do sleep on 4 pillows but am unable to raise my bed as I don't have anyone to help me lift it. This web site has been good as it's nice to talk to others who have similar problems then I don't feel quite so alone with these issues. I hope you stay pain free most days. Thankyou Linda

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In one of your posts you mention you are vegan. Are you getting enough B12? Have you tried vitamin B complex. Digestive problems can mean that vitamin B producing bacteria in the gut may not be present in sufficient quantities for for vitamin B requirements.

I am not knowledgeable on nutrition so cannot advise. I am wondering if your muscle control system is not working correctly due to excess pressure on nerves. I can only suggest investigation. A McTimony chiropractor can help confirm or deny that you need help with this issue.

Alexander Technique can help with muscle control.

alexandertechnique.co.uk/

alexandertechnique.com/

My thinking is along the lines of your stress is probably rather high. If one can get it down perhaps things will function better. The body is an engineering system consisting of several sub systems which interact with each other in unpredictable ways. If the stress is above the stress breakdown point then the systems breaks down. If the stress can be moved below the stress breakdown point then the system functions even if with difficulty.

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Hi sorry I'm not actually a vegan but I have to have a low fat diet and there are vegan dishes I like but many have cheese and spices in and it says to avoid Spicey foods . Yes my stress levels are high due to four years of terrible burning pain on eating. I may try and ask for another endoscope as it seems to have got worse and Pips don't help. You are very knowledgeable and it is also probably nerve endings on top of oesophagitis and gastritis...It all gets inflamed. Thankyou for your kind reply and taking time Linda

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Hi, I used to have those symptoms when I was younger. Got diagnosed like you with reflux but meds didn't work. Eventually I decided to go to A and E (as whenever saw GP pain had subsided). I then got the diagnosis of cholecystitis. (I was young, fit and healthy weight so not typical presentation). I had gall bladder removed and hey presto pain gone. So maybe when pain at worst go to A and E and the Dr's can then get a more accurate picture of what is going on and you might get a diagnosis and ultimate cure quicker. Good luck.

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Hi yes I've thought of going to a and e when pain is so bad but I don't get it at night as I take sleeping tablets. Thankyou for replying. I hope things get better for you

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I've already had a gallbladder out 4 years ago and that's when it got worse. Am awaiting results now of a CT scan. I do wish it would show something

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Hi sorry to hear you’re in so much pain and discomfort. I can sympathise with you as I had similar problems last year. I was diagnosed with gallstones and had to have my gallbladder removed. however, I’ve been suffering with silent reflux for some time and had an endoscopy last week and it has shown my stomach is very inflamed. I’m being tested for H-Pylori which I’ve had a few time over the years. I also think there may be a stone attached to my liver as I’m still suffering in pain on my right side and horrendous bloatiness a year after surgery. I’ve recently had a CT SCAN with radiation to check that area for any loose stones. (Awaiting results) I can’t have an MRI scan due to having spinal cord rod stimulation fitted.

There is a lot of good advice given on here. I hope you get some answers soon.

Take care!

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Hi thankyou. I too had a gallbladder op and it all got worse since then. I have inflammation of the oesophagus and stomach but the meds don't help. I had a scope last May and am hoping they'll give me another as it's got worse. It disabled me quite a lot and is always worse by the end of the day. I also have a hiatus hernia and dumping syndrome

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Hi basten I also get gastric pain I’m under investigation at the hospital but what they have found out with me is I have a hiatus hernia which I was taking loads of over the counter ant acids nothing worked ...... so after a camera test they found this hiatus hernia and the doctor put me on lansoprazole and my life has been so much improved also opremazole is good too and if things get really bad then I have redititine !!! ......but first basten please go see your doctor that’s the first step !!! Hope this helped !!!

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Thankyou. I'm glad your meds help. Yes I will go back to my GP about it as it's getting me down so as I don't want to eat!!!

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To get immediate relief, I drink sodium bicarbonate/ baking soda in water.

I do take PIP. I do have a hiatal hernia and gastritis and zi am being scheduled for ph test

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Thanks for that. I'll try the bicarb.

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