Scoliosis. : I have been diagnosed with... - Pain Concern

Pain Concern

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Scoliosis.

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Spursboy

I have been diagnosed with scoliosis which means I have pain in my lower back, down right leg plus both feet have pins & needles.

I have had various injection, pain killers and last December Lumbar decompression surgery non of which has helped, still painful when I walk or stand.

I have also had physical therapy, acupuncture and at present seeing an Osteopath [3visits] but no improvement to date.

Waiting to got to NHS pain clinic but it's a long waiting list and will not be until March/April.

Any suggestions please

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Hi spursboy welcome, have you tried gabberpentin or pregabilin works for me to reduce pain when you have chronic pain it's learning bhow to manage it and what makes it worse , I know has I have cervical myelopathy had acdf C4 C5 just to stop it getting worse I have problems with lumbar but it's coming from neck I have all them symptoms not nice also amytriptiline is supposed to be ok I had to come of kept going in to retention side effects good luck mate

Hi spursboy

I will refrain from mentioning the 1987 cup final. Oops.

Sorry to hear you’re having problems. I’ve been diagnosed with scoliosis too along with a few other things and have also had surgery (1 lumbar laminectomy and 1 cervical laminectomy). I was left with a lot of muscle loss, lack of control of my left foot, pain (lots of that), loss of balance more pain, painful feet / toes etc.

It was caused by a series of discs prolapsing, 2 of which were particularly bad and caused the surgery to relieve pressure on spinal cord. Why the discs went is another thing.

At the time I had a series of nerve ganglion root block injections into the roots of the nerves as they branch off from the spine. They helped.

I was left unable to stand up unsupported and with constant sciatic pain in both legs from buttocks down to feet. At that point I started seeing a Personal Trainer at a gym who is skilled in recovery from injury. This has been the single most important thing to help my recovery, without a shadow of a doubt. I have been going for about 2 1/2 years now, about 3 times a week. Not always with a PT as it gets a bit expensive, but she still oversees what I do. I do some cardio (warm up) and then resistance / weights / core / Pilates type of thing. Lots of stretches and using a roller on sore muscles.

It has helped with pain, mobility and balance - all of which were things I wanted to improve. I am also pretty sure that if I hadn’t done it, not only would my mobility and balance still be as bad as they were, but I would quite likely have done some more damage to my back or had another (more serious) fall.

I can’t recommend it enough. But I would definitely get advice, unless you’re already very knowledgeable about exercise, anatomy etc.

All the best.

🙏🏻

See an Alexander Teacher and see what they can offer.

Massage to reduce muscle spasms could be of help.

About 12 months ago there was a decent article in WDDTY ( google it ) about scoliosis. Could be worth a look.

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