Hello everyone, My re referral has not happened

[Trulysad-76]

So today I went to my old hospital to see the Nurse pain specialist. I decided not to tell her about the re-referral as I didn't want to end up with seeing no one. I am disappointed with the re referral being dismissed by the new hospital. I am now paranoid they thought I was a patient who would come with trouble. My paranoia was backed by actually seeing the letter my GP wrote and in all honesty, I wouldn't of wanted to give me a chance. I feel that everything has messed up and I have been very misunderstood and judged.

I now feel I constantly have to explain myself and almost convince people that mental health and physical problems can be unrelated!!!!

Anyway appointment today went well and I have been offered more injections in October. I have a tens machine on now and a pain management programme has been suggested for an option.

The question is do I keep fighting to go to a new hospital or fight the specialists that I'm already with. By fight I mean, continue to tell them I actually have pain which has been verified, isn't a mental health issue???

Thank you for taking the time to read if you did 🤗

[Mary-intussuception]

It is really bad that we should have to fight - at all. Don't see why we should have to have our pain and symptoms proven either. Our word is good. Sadly, though, we do have to keep battling on. It seems such an uphill struggle though. Only you can decide the way forward. Whether or not you should continue for now if you are finally getting somewhere and keep the idea of the new hospital in mind to push for later if that becomes necessary. I've had some strange things written about me - not an accurate account of actually went on in clinic ! Long awaited for tests results lost or not on my file. No mention of that! Many times I should have made a complaint but never got around to it.

It does seem though that things have taken a positive turn for you with today's appoinment going well ? How do you feel about having a rest a while and making the most of this positive outcome for the time being. See how things go. Asking for a re-referal to a different hospital might have actual got this reaction - but they'd never admit it.

All the best.

X

Mary

[Trulysad-76 in reply to Mary-intussuception]

Thank you so much for your reply and I think I'm actually going to take your advice and rest for awhile. I am tired of fighting and trying to explain myself.

If you have read some of my other posts you would know I also have had an MRI scan go mysteriously missing. But the MRI and a written email has been recorded and I have evidence it existed. Most frustrating and it makes me sad that I have to fight to be heard, if I'm questioned again though or treated any other way than an actual patient of pain and DDD I will create.

I need to take a step back from it all right now though and see how it plays out, your so right.

Thank you again and sincerely hope you are in an ok place 🤗

[Mary-intussuception in reply to Trulysad-76]

Yes I'm OK, thanks. Well, emotionally. Waiting now for some more investigations. Have had a break from all that for a while!

XXX

[Heltadelta in reply to Trulysad-76]

I agree that you may need to step back for a while. It's exhausting physically and mentally to have to keep fighting to be listened to and more importantly believed.

It's insulting to be constantly questioned about whether our pain is real or imagined. We are the ones in pain so we should know what we are talking about.

Heltadelta.x

[Trulysad-76 in reply to Heltadelta]

Thank you so much, I am exhausted. I have had enough fighting for awhile but because of the specialists, I have had to fight to be believed by a family member very close to me. I have given up trying now and I know what I feel and how I feel and for the moment that's good enough for me x

[Trulysad-76]

I'm glad your ok emotionally, emotions can help lighten the load.

Let me know when your investigations get started and how they go. Always here for a chat x