I'm new here

[TeaInAPot]

Hello, I'm Emma and I've just joined this site. I'm looking for a community where people understand chronic pain conditions and the problems encountered with them.

I have a frustratingly long list of interweaving health conditions, many of which interact with and spark off each other.

Migraines, tension headaches, fibromyalgia, a lumbar disc bulge, sciatica, back pain, irritable bowel syndrome, depression, anxiety, carpal tunnel syndrome, hypermobile joint syndrome.

I'm used to pain, it's my every day normal. Recently though I am really struggling with increased migraines and tension headaches. A migraine twice a week, each lasting 16 hours, with moderate-extremely severe tension headaches in between. It feels like life has stopped. I can't plan for anything. Every hour is just about management, trying to stop things getting worse.

I'm not asking for solutions. I'm just hoping this is a place where people might understand what it's like. How impossible and lonely it feels to be on be outside of life.

[spider555]

Hello, I've fibromyalgia and a stroke.

It's headaches, nausea, sore hands, sore joints. Worse is the burning pain. Can't sleep. Makes me suicidal. Desperate 😢

[TeaInAPot in reply to spider555]

I've also been feeling that way lately. It's very very hard.

[spider555 in reply to TeaInAPot]

Its a bit of a chronic pain dustbin.

Stroke is the same. Very poor care.

[Hidden]

The unreliability of those headaches and migraines must be really hard. I have all your other conditions too except for the migraines and headaches.

I find it hard enough to pace myself so I can plan a few things a week but it's much harder for you.

I have lost quite a few friends through the last few years, just because they don't understand why I have to cancel events last minute.

Wish I could have a magic wand and solve your problems (but sadly don't own one😉)

Have you had an operation for your carpal tunnel syndrome? I'm currently waiting for one as I can't have any injections anymore and want my life back as I used to love to craft, but that's been almost impossible for the last few years (at least if I want to get some 😴 sleep and don't want to be in agony)

Hope you are having a as good as possible evening. Take care x

[TeaInAPot in reply to Hidden]

Thank you so much for your kind response.

The unpredictability is very hard, particularly when dating - chronic pain isn't all that sexy is it?!

I haven't had the op yet, mine comes and goes and right now it's not terrible. Some numbness and pain but not too bad. Losing a hobby because of pain is horrible.

My son often says he would make me better if he had a magic wand. Thank you!

I hope you got some rest and manage well today.

I have an emergency appointment this morning to discuss changing some meds, as they have led to an increase in suicidal thoughts. I agree I should come off them, but these meds were also my best hope for some pain relief.

Can't win!

[Hidden in reply to TeaInAPot]

Thanks for your reply, really I hope your appointment went well and have medication that suits you better. Hope in the future pain medication will improve. I use tramadol and find it really helpful but I'm too scared to take it every day as it then might loose some of its effects and I don't want to get addicted to it too.

Yes dating is challenging, I have not been on a real date since I started going out with my walking sticks. (At least they are very faithful and I can really lean on them 😅)