my khyphosis story

[elvistait]

hi all, where do I start!!!! I have a khyphosis (curviture)of spine and looks like I'm going to get the surgery ive wanted most of my life to correct it. I wondered if there is anyone out there that has been through same as me? when I was 8yrs old, I'm 56 now, I fell off a shed (long story) I fell 15ft onto rubble hurt my back really bad split my head open aswell, after being on my back for a while and after that I just wanted to play footy and stuff so even though I was in pain I just got on with it as I got older mom and dad took me to see several doctors about how my back looked eg hunched over at school I started getting bullied and called names, I know not nice. I once again just got on with it. as I got older pain got decidedly worse I managed with the help of strong pain killers which ive taken most of my working life and the last few years of my woking life ive been in absolute agony. now I'm in the hands of the bham orthepeodic hospital so hopefull they will sort me out through khyphosis surgery. I just wanted to hear from anyone going through the same thing please.......

[Hidden]

Many of us have similar experiences, but with different details. Since you have suffered so much and now face a complicated surgery, it wouldn't hurt to have some emotional support. Even if you develop a habit of taking 5 Deep Breaths, relaxing your muscles, and calming your mind. Sounds too simple, but is research-based and free

[5Steps in reply to Hidden]

Can I just add to the breathing advice. We are often advised to take deep breaths but never told that it isn't the breathing in that is beneficial but the breathing out. It is only when you exhale that you release tensions. Most people in chronic pain do a lot of breathing in but barely breathe out at all. Make your out breath long, slow and controlled and focus on relaxing downwards all the time.

I teach this to many people in chronic pain and it is always effective.

[Hidden in reply to 5Steps]

Great reminder, thanks. Now if I can only remember to relax my jaw and neck muscles . . . .

[lotsoissues]

i just have been told i have mild kyphosis. i have psoriatic spondylitis which is an autoimnune spinal condition which caused my kyphosis and doctors are hoping to stop the progression of it with medication because my ibflanmnatory levels are what's causing it. i've never had spinal surgery but it sounds like anytthibg that could make you feel better is worth trying. You know your body and pain level best so just be honest with your doctors and see what they suggest.

[Steve_inpaintoolong]

Hi 5Steps,

I can't get my head round what you said....

"Can I just add to the breathing advice. We are often advised to take deep breaths but never told that it isn't the breathing in that is beneficial but the breathing out. It is only when you exhale that you release tensions.

Most people in chronic pain do a lot of breathing in but barely breathe out at all" ????

I teach this to many people in chronic pain and it is always effective....... !!

I fully agree with you I would also advocate breathing out...... :0)

Reply

[5Steps in reply to Steve_inpaintoolong]

Hi Steve. You should try to become more aware of how you are breathing. You will find it changes throughout the day and particularly when you are in pain you may find yourself holding your breath instead of breathing through it.

Take a few slow and soft breaths in and out and you will find that helps you to relax physically and mentally. Don't worry about making them big breaths but aim to keep them as smooth as possible. Gradually they will lengthen on their own.

[elvistait]

no-one has answerd my question is there anyone out there that's had this surgery please get in touch. thank you to all the breathing replys I got.

[5Steps]

I know someone who had corrective surgery for scoliosis. The op lasted 6.5 hours and she had to stay in a back brace for 6 months after. However, it was successful and has changed her life even though the recovery period was a good 18 months or so.

[elvistait in reply to 5Steps]

thanks for that, ive looked at all the information on the net and the vids of the op believe me it will be worth all the pain if it works for me, ive got a lot to think about still cus of all the probs I'm going to face, like I live in a 1st floor maisonette so that in itself is going to be hard steps inside and outside the house. but as soon as my surgeon said I was a candidate for surgery I was happy, to stop all the stares I get from people and the double takes I get when I walk past someone and they look back at me it will definitely be good for me, just cant wait for it to happen now, bring it on. I have to see surgeon on 24th jan.

[elvistait]

Hi everyone, I've been back to the hospital for a second opinion from another surgeon he looked at x rays and stuff and he spotted and diagnosed me with AS (anykolising spondylitis) my hips have fused both sides and its going up my back so on top of my khyphosis its another blow to me,yet those nice people at DWP have stopped my esa money saying im fit for work!!!!!!!!!!! Most days I cannot get up from sitting down due to the excruciating pain im on morphine tablets 40mg twice a day plus paracetamol and ibuprofen and also liquid oromorph ive got high bp high cholesterol also heart problems. You tell me how can they say im fit for work????!!!!! P.s I also suffer from depression which IS getting Worse please help

[elvistait]

Me again, I forgot to say im not the only one suffering as my wife and 3 children are suffering too how do they expect us to live ive always worked always paid my taxes always paid my national insurance and now they treat me like this it really helps with my depression!!!! I cant tell you what im thinking at the moment sorry