Worried about my Assessment PIP

[jayjay49]

I have many things wrong with me

Bipolar, Fibromyalgia ,ME, Schizophrenia, Damaged coccyx, carpel tunnel in both hands

sleep disorder, osteoarthritis, disc problems in back etc. Why do we have to have these assessments I am 67 and I find it hard with everything.,

[Bananas5]

I assume you are on DLA at the moment and have been 'invited' to claim the new PIP?

It is NOt about what you have wrong with you but how you cope with those conditions and the help you may need.

x

[jayjay49 in reply to Bananas5]

I have problems doing everyday things and need hep all day every day.

my husband helps all he can with me but he is disabled himself with MS.

but we get by together.

[Coastwalker in reply to jayjay49]

Check your husband doesn't have a low or deficient B12 bloods also jayjay49.

[ukmsmi4]

Hi jayjay49

I take it you have already had your assessment, if so I will keep my fingers crossed for you that it goes well.

Unfortunately as Paton says, the rules of PIP have changed from DLA which used to be more about your conditions. Now PIP is more about how you cope on a daily basis. I agree though you would think with the lists of issues that some of us have it would be fairly obvious how we 'cope' on a daily basis - not very well.

If you haven't actually had your assessment yet then I would suggest you try and find a disability advocate who could accompany you to the appointment. They may be able to help guide you through it.

Sadly I think all these changes just seem to be designed to cut the numbers of people claiming and they don't really seem to be about how difficult we are finding life. It can happen though. I have in the last few months been awarded enhanced PIP for both elements and like you I have ME, Fibromyalgia and lower spine issues (plus RLS, FND, IBS and other things) so it's not impossible for them to see that you are struggling.

Good luck with it. Gentle hugs, Margaret. xxx

[louloumorgan]

hope it all goes well for you . I know its rubbish having to explaine how ill your are xxxx

[Coastwalker]

Bipolar, Fibromyalgia ME, Schizophrenia is now being linked to low FT3 blood levels, (Thyroid hormone levels,) carpal tunnel and some type of spinal degeneration problems can be down to B12 deficiency.

Damaged coccyx, osteoarthritis - an idea to check your vitamin D blood levels.

Sleep disorder can tie in with low thyroid as in adrenals/cortisol levels.

An idea would be to post your story up on 'Thyroid Uk' also here on Health unlocked.

Also mention your Husband with MS.