No stroke forum: Hi I don't know if anyone can... - Pain Concern

Pain Concern

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No stroke forum

Dawnie55 profile image
9 Replies

Hi I don't know if anyone can help me I'm looking for stroke forum but can't see to find one,I've had Meningjitis pneumocooal stroke and brain absess 3 months ago, I am trying to find out if other people are struggling with things now 3 months on as I am getting awful pins and needles in my hands and pain in my wrists elbows and shoulders all on the side that wasn't damaged by stroke and a bit worried , so if any one can help me with any information would be great, also got diagnosed with severe sciatica which is worse since being ill thankyou in advance dawn

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Dawnie55 profile image
Dawnie55
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9 Replies
Dexter1 profile image
Dexter1

Try Different Strokes community.

Dawnie55 profile image
Dawnie55 in reply to Dexter1

Thanks dexter1 will try

Dexter1 profile image
Dexter1

There are also several pain communities for the sciatica. Take care

Steve49 profile image
Steve49

Hi Dawn.

Welcome to our site - yes the Different Strokes Forum on here is a good start for you.

I had a Stroke in 1998, the Stroke effected my left side so I it is totally numb.

My right side is also effected with Chronic Pain following all of my brain surgeries.

So I can relate with your pins & needles & pain.

Please contact me if that my help ???

Dawnie55 profile image
Dawnie55

Hi Steve just put up roughly what happened to me, I think I'm still finding things hard to come to terms with, because I wasn't I'll before this no warning nothing I was in work when it all happened next thing I remember is being in icu and wandering why I'm there I can't understand what happened very weird so pleased I found here might get some stories I can relate to

Thanks dawn

Kellie73 profile image
Kellie73

There are forums on stroke.org.uk as well and I think thebraincharity.org.uk. my mum suffered a stroke and it is hard to find and navigate forums for it and access support services. I think the brain charity are only based in liverpool, but their site says they have a forum

Dawnie55 profile image
Dawnie55

Thanks kelly73 I will look them up x

AndrewT profile image
AndrewT

Dear Dawnie,

Apart from 'Different Strokes' and the 'National Stroke Association', most other Stroke Services appear, as far as I can determine, to be based in local areas. Locally to me, for example, is 'Tendring Specialist Stroke Services' (TSSS), I have heard of similar 'Services' elsewhere-but cannot name them unfortunately. I'm sure that local Libraries/Citizen Advice Bureaus and the like will be able to 'point' you, in the right direction-so to speak. There is an organisation called Headway, that provides support for Brain Injury, they may also be able to help.

Sorry that I can't be of more help Dawnie-please do let us all know how you 'get on', will you?

Kindest wishes

AndrewT

Dawnie55 profile image
Dawnie55

Thanks Andrew I will do I'm getting there slowly I have a stroke nurse coming to see me on Friday to explain things properly to me , I'm getting fitted with hearing aids tomorrow that has been a big problem for me as never had a days trouble with ears before now. I have been told that they should help with balance I hope so and if pain settles down I will be getting there. Will keep in touch x

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