Hi I'm new to this pain forum and could do with a little advice from fellow sufferers. I have severe chronic IBS (best guess diagnosis!) with horrific lower abdo pain, frequent fainting and incontinence, as well as lack of control of body temp, shaking and disorientation. It's been nearly 8 years of getting worse and worse. I've had every test, tried very diet and drug imaginable, seen GI and Pain Management people and am currently on Abstral (Fentanyl) tablets since the start of 2015 as a last resort because they are the fastest absorbed painkiller that I can give myself at home. However, the senior GP at my local surgery rang last week to say I couldn't possibly continue on these, I'd had my last prescription of them, because I was costing the NHS too much money and I would bankrupt the surgery, so I would have to switch to morphine tablets which in addition to the horrible side effects of nausea/dizziness/constipated and the feeling of being dead drunk, take an hour to work, leaving me in agonies of pain and with all symptoms blazing, in need of assistance to even get of out bed to the loo. In the past this has left me needing frequent emergency admission to control and manage the pain but since being on Abstral I have been able to manage better on my own, even managing to leave the house occasionally and generally feel a little more independent and a little less disabled and isolated. Sorry for the long post but if anyone has any advice on how I can fight this lack of consideration for not only my pain management but my quality of life (which isn't great but will be considerably worse) and be left once more needing frequent emergency care, I would be very grateful. I'm only 31 and feel my whole adult life has been on hold due to this horrible life changing illness.
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