As most of you know I have quite a lot of medical problems, but this one is really getting me down. First saw GP in 2012 sent for X-ray which confirmed osteoarthritis in hands/fingers and inflammation in fingers, but not joints, after having ultrasound scan. My fingers have been swollen, hot and very painful all this time. Seen Rheumatologists, first one left so now see the top one at our local hospital, firstly he said it was sero negative inflammatory Arthritis, started on MTX and folic acid took for over 3 months but had very bad side effects, changed to Sulphasalazine took for 4/5 months did nothing, but give me headaches and nausea etc., have been taking Hydroxychloroquine for nearly six months still no difference in pain, swelling or stiffness. At my last appointment in January he said he doesn't think it is Arthritis and didn't want to see me for 9 months. I have now spoke to gp who has advised I contact Rheumy nurse for advise as he said getting a second opinion (which I asked for) is going against the rheumy who is top consultant and that I would have to start from scratch with all the blood tests and scans and X-rays. The nurse called me back yesterday and the consultant has said he doesn't think he can do any more for me, but has agreed to bring my appointment forward to the next earliest available. I am at my whits end as to what to do now, what to expect from this appointment and who to turn to. I cannot tolerate strong pain meds, I take the max dose of paracetamol daily and have done for many years for fibromyalgia, I take steroids for lung condition, but can't have the injections because of diabetes, I can't take anti inflammatories due to asthma. What can I do now?
Sorry for the long ongoing saga, don't know where else to go to rant.