hi eveyrone, can you help me, i am looking for some advice?
I have L5/S1 disc degeneration and was diagnosed in 2012 but my problens started in june 2011. I have tried all the usual stuff, amitryptline, gabapentin, diclofenac, ibuprofen, tramadol, all the strong pain killers as well as various antidepressants.I can t take ibuprofen anymore because they have irritated my stomach. I take omezprazole to help with that.
i have recently been on Butrans bunepormorhine patches for 6 months but have had to stop using them as they were burning my skin. I am now back onto 8 x codeine a day and 8 x paracetamol a day but it just isnt enough. i am into my 8th day without the patches and i am climbing the walls, not with withdrawal but with pain. i just can tcope but i cant take anything else because i always suffer side effects. the best pain relief i have had is the patches but they were burning my skin to the extent that i was having to change them everyday just to get some relief but they are meant to last for 7 days.
the morphine patches have stopped my eating and affected my stomach to the stage that i am now unable to eat anything i am surviving on Mocha coffee, i cant even eat sweets anymore? this had been going on since i started using them in August of last year. I have had a duo-dendoscopy to see if there was anythng that could have been preventing me from eating, they were looking for cancer but thankfully didnt find anything. i am due to go back to see him in 2 weeks but i cant cope anymore and my GP is a total waste of space? I have lost so much weight i am skin and bone, i know i need to eat but i cant because when i try i feel as if i have a tennis ball stuck in my chest. I dont know if the pain is in my chest or between my shoulder blades in my upper back?
i had a facet Joint injection at the beginning of jan which was to hopefully help with the back pain so that i could reduce the strength of the patches to help me eat but that hasnt worked and i have had to come of them anyway.
i dont know what to do, my back hurts, my stomach hurts, i have pain in my shoulder blades, which isnt my normal back pain and i feel that i have a super tight belt around my ribcage. i know this could be a sign of IBS but surely they would have seen that when i had the duo-dendoscopy, wouldnt they?????
i am at the end of my tether, i am crying all the time and i can feel myself sinking further and further into despair. My nuerologist said he will refer me to a Pain Consultant but i will have to wait to see him and then he will just give me more tablets that will probably fog my mind and make me feel like rubbish. i work full time but i have recently been really struggling so i had to take a couple of days 'time out' which isnt me. this thing is controlling my life, it is all i can think about which is making me even worse. help help help!!!!
has anyone had Spinal Fusion or Disc replacement as i am seriously thinking of looking into this and going private to get it done.
my nerologist says 'there is no surgical target' and that the problem i have is not impacting on my nerves but the pain feels like it is. i have lower back pain, leg pain, bum cheek pain, cramp in my legs, pain in my feet, i need help but i feel that i am taking 1 step forward and 5 steps back at the moment. my head is clearer becasue i am not on the morphine patches anymore but the pain is crippling me and i cant cope anymore.
sorry for the rant but can anyone help me with some advice?