Does anyone take Topiramate? Can you just take it at night and not in the day as well?

My Doctor said split the dose but I have more pain at night and it makes me drowsy. I don't think I need it in the day.

[Hidden]

Hello BOB here

You must have migraines, as this medications is also used for seizures and convulsions. How can I help.

All the best

BOB

[Hidden in reply to Hidden]

Yes, anticonvulsants often work as pain killers. Topiramate is prescribed by my pain consultant off label and I started it recently. I have to say it is by far the best painkiller for night time (lots of nerve pain in legs and bursitis in hips) that I have tried. Morphine is good but my dose is too high and it's important to get it down - Im sweating at night, a sign of opiate poisoning! Also sweats wake me. I also take 150mg Oxcarbazepine at night, also an anti convulsant, been on it for years. It helps but can't tolerate a higher dose. Migraines rare with me so topiramate not prescribed for those. Do you know anyone who knows about topiramate - or have any reference books? The BNF maybe? Thanks.

[Hidden in reply to Hidden]

Hello Bowbells

Bob Here

I have only heard of this medication in the treatment of migraine, next door where I live it is taken regular for migraine and she seems happy with it

One of the best places regarding this medication is on NHS CHOICES in their A to Z, this will also give further advice on when or where it is used and the conditions and contra indications caused by this drug, the section is quite extensive so you will be kept busy reading it

Hope that helps

All the best

BOB

[Hidden in reply to Hidden]

Thanks Bob, I shall definitely have a look. No side effects so far, and it seems to have stopped the morphine sweats. YaY!

[painwhyme in reply to Hidden]

hi i also have the nerve pain and bursitis and have suffered since i was 18 with back pain my G P is thinking of giving me Topirmate i am on high levels of morphine may be its worth a try as it sounds like it has given you relife

[painwhyme]

hi my G P is thinking of giving me this for my back pain but when i read about it i am not sure why dose any one have this for back pain

[Hidden in reply to painwhyme]

Anticonvulsants like carbamazepine, valproate and topiramate are often used off licence as pain killers for chronic pain. They act on the neurological matrix, which is dysfunctional in chronic pain. Different drugs suit different people. In my experience they are worth a try. I am finding this very good - huge pain relief, more thanmfor any non opiate I've tried, no side defects as yet, and it's stopped my morphine sweats. I should be able to reduce the opiates which got too high because we couldn't find other options I could tolerate. I would say give it a go, it may work for you,you but you won't know if you don't try. Good luck

[Hopinggh in reply to Hidden]

Hello Hidden!

My dr wants to give this to me. Are you still.taking it and what were your side effects, if any, all these years?

I am afraid to take it. Im.65.

Thank you !

Hooinggh

[Hidden]

I have found the answer. You have to split the dose once a single dose is over 50mg.