Professional Patients: Hello One of the... - Pain Concern

Pain Concern

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Professional Patients



One of the situations we find ourselves in is our conditions, we become so involved in our own chronic conditions that we have to begin to understand the system we have to respond n, All this leads not only the condition we have, but what we need to live our life, that is why an occupational therapist is slipped into our lives. They act as a further friend who can keep us in our homes and help us lead a more full life, in a environment that we know well. our own homes .

If we use this service a positive and understanding relationship needs to be entered into.

as life in a chronic condition can be very expensive to the sufferer

Disability aids are expensive, we need possibly special bathrooms, stair lifts, down stairs toilets, adapted kitchens, the list goes on. Even aids to just sit and watch tv can be also expensive. How many of us require to bend too lift of the floor so grabs etc can be supplied

On some occasions vat can be refunded the list goes on.

Generally when we live a in a normal house it is a little buisiness, so when we are chronic disabled this buisiness becomes even more complicated and expensive When we go out in the car it has to be adapted, comfort is even more complicated again able bodied fail to realize that this has to be thought of. When we use public transport that in itself becomes an expedition, as do the shops we visit. This list and activities can go on and on.

When all, this is taken into consideration no wonder many disabled may look upon themselves as a professional patient.

All the best


3 Replies

Hi Bob, have to agree with the Occupational Therapists, they have been wonderful.

They organised the paperwork for me to have my bathroom converted into a wet room/shower room, grab rails and such. They've provided equipment too, along with raising my bed, providing a kitchen stool etc.

Also I take for granted - I cannot do something, which other people take it in their stride. When I do go out, I carefully think it through, where, what can I do on the route which is easier - may take longer but for me easier.


When you talked about public transport it occured to me to mention that when I appiled to get a travel card for my scooter, I was told that my scooter was 2cm to long and therefore not accepted on the train. So there goes that option along with busses etc no wonder we all stay at home !!!!!

Hidden in reply to dogbreeder

Hello dogbreeder

Welcome to the crazy world of public transport.

What gets me are the side seats where you sit facing the aisle, with nothing to hold onto and the driver goes around corners like a man in a mad dash.

I realize that these places are for wheelchairs also, although it is manic

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