Well ladies as you may know I was in a muddle as to what to chose Chemo or Clinical trial.. it turned out my prof really advised chemo before I end up with a bowel obstruction but I was really erring to soaring until Jan to be able to start the clinical trial . Well the Dr of the trial phoned me and actually recommended I do the chemo - but the good news is if the chemo doesn’t work / gets too bad I could still do the trial mid jan! Well advice from any of you wonderful women needed - have any of you done Cisplatin/ Gemzar? Any specially good anti sickness tablets you can recommend ( I’ll ask for emend for first 3 days anyway...) I’m pretty terrified to be honest...😳
Here I go again - any advice?! : Well ladies as... - My Ovacome
Hi. I have had Cisplatin/Gem. Have you had Carbo previously? To be honest Cisplatin is harsher but did work for me. Sickness was an issue and I ended up on cyclyzine which worked very well. Domperidone didn't touch it but cyclyzine worked very well. You will need rest, listen to your body and be kind to yourself. I finished Cisplatin Gem in early Dec 2013, been on Parp ever since Good luck. Kathy xx
If you're at the Christie they will give you Emend and Ondansetron before the chemo, and takeaway Metoclopramide. I had Cisplatin/Etoposide for the Rotterdam in the summer - I didn't feel sick but had some strange food cravings and was off other foods for a while. I never needed the Metoclopramide. I slept for about 3 days after coming off the steroids. Cisplatin/Gemzar may be different - who knows? I would just say it was doable. Big girl's pants on!!
You poor wobbly jelly! I would be too--will be too (I am sure) but it sounds like those that have had this regimen have done well on it. Take the pre-and-post meds and find a good junky TV show for the "couch days" and onward. Sounds silly to say but you have the best plan--that you can still do the trial if not working. I am thinking of you and hoping hoping hoping this knocks you back to remission. oxoxoxo Judy
I've had carboplatin and gemcitabine. It was successful in getting reduction and stability. Day 8 was discontinued after dose 3 or 4. I felt weak and wobbly and had a terribly sore mouth but tolerated it fairly well.
I'm nearly finished on carbo/taxol and I've had Akynzeo, a long acting (5 days) anti-sickness which has worked a treat.
Good luck. 💐💐 Xx
Thank you Little San. I am so glad to hear from someone who has had this type... thank you!
I so wish you well on Carbo Taxol and I am making a note of this anti sickness!! I’ve just been given a new drug to Take an hour before chemo starts on Monday called Rolapitant - sounds a bit like Emend which did quite well for me before ( mind you I was terribly sick on Carbo Caylex so just shows everyone reacts so differently!) hoping your chemo is bearable and does the job! 🙏❤️💕
Now I’m not so sure I will be able the trial Dr thinks so but prof thinks not - and I’m due to start the chemo on Monday! I’ll try calling today to see if I can get any clarity on this now. Well I am so hoping this trial points to an exciting new advance and most of all - it works for you!! Many thanks for replying - it’s so good to Know someone out there who understands...thank you
Thank you Jo - I’m a bit confused now as Prof says if I do this chemo I won’t be able to do trial - however the trials Dr had phoned me to say it would be possible ( should the chemo not work..). So I’m a rather ‘confusedgal” rather than hopeful at present!! Need to take a deep breath. May try to talk to trials Dr again today now!! It feels like I’m playing each off against each other which of course I’m not I was just really interested in doing this trial at some point!! Maybe just take a step at a time - who knows this chemo may just do the job... 5th time lucky 🙏 xxxx
Just putting one foot in front of the other Joils. The trial was suddenly whisked off the table so I’m still on the cisplatin - gemzar combo ( at 50% reduced dose) and hoping so much it works but the daily pain I’m in indicates it’s not doing much!! I’ll see soon as a scan approaches. How are you doing? X