I finished my chemotherapy 8 weeks ago and have just returned from the longed for holiday. I think I had hoped the holiday would be a magical cure but in fact i wasn't up to much whilst away and still feel as bad now I'm back home. the break an change of scene was wonderful but I still feel all over the place.
All oncologists are mavericks but mine is definitely one; he has a huge brain and I know I have been in good hands but he upset me with conflicting information; he asked me to consider having radiotherapy after my chemo. This was due to a promising clinical trial in Canada and I apparently fitted into the group of women for whom it could prove useful to prevent reaccurence. I agonised over it but was definitely thinking about having radio as well. I was then informed that it wouldn't be appropriate and that my MDT had disagreed with him due to the rarity of my cancer and the fact that no clinical trial was in place within the UK.
I was diagnosed as 2C but apparently had a rare form which meant that my pathology was sent to the leading expert in UCL for his opinion. It appears that I had 3 tumours which were all independant from each other and so this is apparently 'good news'?! My oncologist shouldn't have told me about the Canadian trial and suggested this extra treatment as it wasn't necessary for me.
I know that is seemingly good news but the conflicitng information wasn't helpful. I also don't understand why 3 separate tumours are not more worrying? How did they appear? Why does that not mean more concern about reaccurence?
and what does that now mean my diagnosis is? Is it still 2C.
I have not had a final blood test and don't know what my CA125 levels are and am terrified that i won't know if it's come back...
I haven't worked during all of this thankfully so that i could concentrate on getting well but now I don't know what to do about it cos my focus has so changed. I have worked since i was 16 and always had stressful jobs; I wonder if that contributed to my getting cancer and so don't want to put myself through it again. What to do though............
In addition, i have pains in my joints and my tendons - is that normal at this stage after treatment? I have a peculiar rash on one foot and the sole of my foot seems to be peeling skin? Gross! what is going on......then there's the usual tiredness still and hot flushes, anxiety and feeling low...........God I feel crap!
Has anyone else had any of this?