Just to recap. this is a trial drug taken in pill form each day. I have been taking it since October. The trial period ended in January but as my response was good I continue to take it. I was the first of only 7 women in the UK and 100 worldwide to take it as a phase 2 trial for OC. I think it has been licensed in the US for thyroid cancer and is also proving effective for prostate cancer.
The trial MAY re-open and my oncologist at the RM has already got another 6 women lined up. I recommend that you make your own oncologists aware of it so that if you are a suitable candidate you can be referred.
I'm not familiar with the trial criteria but my cancer had spread around my liver and throughout my abdomen so it doesn't sound like a first line treatment. I have already had carbo/taxol, caeylx and Topetecan. A good proportion of my tumours were cyst-like. The drug works by attacking the blood supply to the tumours. Mine have significantly reduced in size and are haemoraging. This activity has caused my CA125 to rise and is not viewed as a valid indicator.
I've already talked about the side effects. Some have subsided and I am learning to live with the others. Immodium dependent!!
Its not a cure but the drug is certainly knocking the stuffing out of my tumours for the moment - long may that continue. I very much doubt I would still be alive had I not been given it. I certainly wouldn't be off to Cyprus with my husband and teenage sons next week.
I really enjoyed the rants initiated by Suzieque last week and while I sometimes get fed up with the Polly-anna style reasons to be cheerful this IS a good news story.
I hope you can all enjoy the sunshine.