hi all, I have been meaning to post some experiences for a while to encourage those newly diagnosed as I have had plenty to be grateful for. I was diagnosed eventually in july 2009 on emergency admission in truly terrible pain as 3c well advanced, too extensive to operate initially so was shrunk with 4 carbo taxol treatments followed by big surgery and two more chemos. All went as well as possible ca125 dropping from 1800 to 16 by end of treatment in feb10 and me recovering sufficiently to vist scilly isles, Maldives costa rica, Canada, Italy, new York , and ride horses daily , White water rafting , cliff jumping, buying and training a new wolfhound puppy, getting a new young horse, walk 13 miles for the local hospice, as well as working long hours running my development company take up pilates and start a new anti cancer diet/lifestyle. So all going remarkably well until last week when back pain increased always bad due to breaking 3 vertebra about 4 years ago so not unduly worried then I've started to feel really sick, bloated etc with nasty sharp cancer /chemo type pains, organised blood test which happily still says ca125 is 16. still feeling really grim and waiting for a scan date, then thought this feels like someone has given me a large dose of chemo also noticed neuropathy in feet had got worse which is odd, so does anyone have any clues or similar experiences. It would be great to hear from anyone who might be able to shed light, don't worry about telling it as it is as I 've read all the statistics and according to consultant am on borrowed time which makes each day a huge bonus , but if you are newly diagnosed and I do remember the feeling that it was all over, I'm proof that you can still achieve masses of things after a really terrible prognosis, I was 49 when diagnosed and recently separated after an 18 year marriage so masses to comes to terms with but on the whole obviously not great but there have been loads of good things come of it , my hair grew back thicker! My friends were brilliant , I really appreciate each day and get on with things that I want to do while I can, my attitude to people's silly issues has changed and I tell them to get a grip,I can be a bit rude at times but heyho, have enjoyed fundraising for hospice, ova come etc and I am determined to keep going I certainly know a lot more about cancer , nhs and hospitals than I used to but probably need to know more so any help gratefully received and I'm very happy to share whatever I've learnt
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