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My Ovacome
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Special Person update

Hi lovelies,

Saw my Special Person’s oncologist today and it went far better than expected, so as some of you are aware we were expecting to be offered either weekly Taxol or the DICE trial.

Her oncologist is pleased with her and has decided she can have a further couple more months off treatment as her CA125 is only 305 we were expecting it to be through the roof.

She will have to start treatment in coming months but back in September her oncologist labelled her platinum resistant however shes said today that platinum treatment will be open again where she’s had 6 months off it. If the platinum treatment doesn’t work then she’ll be offered the DICE trial and go from there.

Hope you’re all as well as can be and enjoyed your Easter 🐣 weekend xxx

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Hi

Glad it is some good news. Always welcome. Enjoy and make the most of the extra couple of months treatment free.

Best wishes

Fay

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We will be making the most of it! Hopefully she’ll be able to go away with her granddaughter which is on her to do list xxx

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Excellent have a brill time

Fay

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It’s great that she’s having a break to build herself up and enjoy life. 🤗

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Definitely agree with that! Xxx

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Oh that's good news! At lease your special person can have a summer off and hope fully build up her strength. So pleased things went well. xx Kathy xx

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Exactly we’re pleased we thought it was gonna be a case of I’m sorry there’s nothing more we can do but it’s not so now we can relax for a bit xxx

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I'm so pleased xx

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That’s great news! I was just wondering how things were going and I was going to message you to ask. I hope she enjoys the summer and manages that little holiday x

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I hope she does too! It’ll do her good to chill. How are you? Xxx

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I’m a bit ‘Meh’ at the moment. Heading to cycle 6 of this lot of chemo, with no real confidence as to the impact it has had on the cancer, but feeling relieved that I have actually (almost) completed a full line of treatment, having been on this treadmill since August, with two failed drugs along the way. Hoping for a little break at the end, and maybe a PARP inhibitor. Not many treatment options left for me otherwise, but not giving up yet!

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Definitely don’t give up we keep thinking they’re out of options when we see her oncologist and there always seems to be other things coming up xxx

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I’m sorry you are feeling a bit down. You’ve had a rough time lately. I really hope you will have good results after the chemo and also get a chance to build up your strength and energy.

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Thank you, Delia x

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Oh that's good to hear, I hope she has a lovely couple of months rest 🙂 x

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I hope so too xxx

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great news,a good break is whats much needed xx

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Definitely I couldn’t agree more xxx

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Wonderful to hear. You and your special person deserve a break. Enjoy every moment.

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We will xxx

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Yeahhh.. partying then for a few weeks 🤣🤣. Enjoy no treatment for now .. Happy Easter too xxx

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She can let what little hair she has down! We’ll be celebrating with a nice drink or two xxx

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Great to hear .... and breath. Enjoy your freedom . 🌸🌸🌸🌸

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I’ll definitely make sure she enjoys it xxx

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What good news! Always glad to hear the positive, we will all take a little bit of the feel good away with us. Thank you both so much for sharing. Enjoy the break! Xx

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It’s nice to have some good news especially with all the negative stuff in the press, gives us all a little bit of hope xxx

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You have cheered all of us with your good news.

I hope you too can relax for a bit and both of you can get out to the gardens, either to enjoy or to refresh.

Hugs,

Laura

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Refresh for me and her definitely start planning a few bits without worrying about what the hospital has to say every few weeks xxx

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Yay, that's good news indeed. I was thinking of you yesterday.

It must have been a tough last few days, when you expect to hear the worst.

Bet you both will enjoy the treatment free summer. :)

xx. Maus

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Definitely will be enjoying as much as possible before heading back on chemo. We’ll be at the hospital on a 4 weekly basis for now but having no treatment in between will also give her better quality and hopefully give her body chance to reset ready for line 8 of any type of treatment (including maintenance drugs) xxx

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Great news and how lovely to have the summer off treatment hopefully xx Also great to be offered a platinum chemo again the more choice the better x

So nice to hear good things xx

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Definitely more choice the better, although it does make me wonder if they make it up as they go because I was under the impression when you were resistant to a chemo you couldn’t go back on it... who knows all I know is I’m not arguing xxx

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So glad to hear your good news. Same happened to me last summer, was expecting to start chemo but things settled. I had a ball!! Hope she does too. Xx

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I hope she does too! Xxx

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Some positive news at last, I am sure you will both enjoy the time away from treatment. I am hoping to get to 12 months post 2nd line platinum treatment so if the beast rears it’s ugly head I can have 3rd line platinum.

Ellsey xx

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You should be able to have 3rd line platinum as it has to be a minimum of 6 months according to my special person’s oncologist but I don’t know if every area is different??? Hopefully it’ll go away and not come back xxx

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Good news and enjoy the Summer.

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I plan to enjoy the summer and make sure she enjoys the summer too! Xxx

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Good news. Always worried about the "no more we can do" comment and when several (or more!) options are listed, there is a calming feeling! I also don't get the platinum sensitive vs resistant by the fact that you aren't on chemo for over 6 months. But take it!

I am glad your special person has some time to recover, and to see her granddaughter. oxoxoxo Judy

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I don’t know how they can label someone platinum resistant without a definitive test to which there are none for it! It’s also confusing saying platinum is available again when she’s been labelled platinum resistant..... hopefully she’ll enjoy her time off chemo and make more memories xxx

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That’s really great news! Enjoy the break from chemo—it’s nice to have that for summer!

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Definitely she will be enjoying the time off! Xxx

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That is wonderful news! See....hope is everything. Perfect time of year to be off treatment...you can go enjoy the beauty that Spring brings. So happy for you!!!!

XOX

Marisa

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Definitely I love autumn the best but spring is always wonderful especially when the days get lighter. Hope is everything as well as knowledge, this website is so valuable, a fountain of knowledge I would be lost without it xxx

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I love Autumn as well! I love the colors and the coziness of trying to warm up.

I would be lost without this website as well! I would never have met you!

XOX

Marisa

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Likewise definitely the best place to come although would have been better under different circumstances xxx

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Agreed!!! We live in a strange little Universe. lol.

XOX

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that sounds like good news, enjoy the time off and try and take time out with your special person

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Definitely intended to. I think it’ll do us both good xxx

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