I had my reflexology last week at the Big C at the Norfolk and Norwich Hospital and enjoyed it very much . When I came out I got chatting to a lady who as you do asked what I had ..I told her OC and she said she had the same ..Was diagnosed in 2008 and bless her was at stage 3 but the beast had come back more than once , she told me untill she had spoke to me she had not MET anyone else with OC .She went back to her ward as she was an in patient but before she went we swopped tel numbers .
In came another lady with her friend ..we get talking and this lady who has the same name as lady one ! has OC stage 3 and again till we spoke had not met anyone else with OC .We also swopped tel numbers .
On Friday I had my 4th chemo and this time I get to sit near someone as normally the chairs are in a long line ... The lady I sit near we get chattering too and it turns out that she has OC but bless her after first line treatment in 2010 it has come back ..She also told me that untill we had met she had not met anyone at ALL with OC .
It was amazing to meet these very brave ladies .
Written by
Jan76
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At the hospital I go to wehave a gynae cancer support group. We meet once a month very informally to chat have talks etc. It was started a few years ago by the two support nurses who are both excellent cake makers!!!
I do enjoy going it's rather like being on here talking to ladies in the same position as you are and who understand.
Perhaps you could ask your support nurse if one could be started in Norwich.
There is something called Pandora's box and they have their meeting at the Big C and its for ladies with Gynae Cancer but theres no meeting till July .They did have one in March but I missed it as had Shingles at the time ...
I live in South Norfolk and go to Norfolk and Norwich hospital. I have stage 4 OC and have just found out my cancer is active again after just finishing second line treatment.
It would be nice to talk to other people locally and as you say I haven't met anyone who is currently fighting this disease. However a childminder friend had it over 12 years ago and has been fine since then.
I wondered if you and the other ladies would like to meet up somewhere - even at the big c centre to have a chat. We may be able to support each other in what is a very traumatic time wherever you are in the treatment.
Its going to happen Sarah ..... we need to meet up and swell the numbers for pandora's box In July ..as one of the nurses was telling me that the numbers are low ... But we can meet before then !
Yes 18th good for me. I could get to the big c centre for 10am so anytime after that but I would need to leave about 2pm to get back for the school run.
That will be another thing in my diary to look forward to.
I've put 18th May on the calendar. Just tell me what time and I'll be there! I might give them a ring before hand in case we can get a room. My experience is that if you sit in the general area you tend to make conversation with everyone - which is fine - but I'd like to concentrate in talking to you both.
Did have a word with Daphne on Monday when I was there at there big C re our meeting and if there is a room free its not a problem .....
Daphne said she would mention to the other volunters that I had spoken to her about a few ladies hoping to have a get together there in May in case she is not about on the day ...
Hope the other ladies can make it ..
Love Janet xxx
We all need the support of others. We have started an Ovacome group at St Richards Hospital in Chichester, and the numbers are growing, we meet once a month in the hospital. Check that Ovacome don't have meeting near you... if really helps to meet others that know what you are going through.
After last week meting three other ladies who had never met any one before with OC ..the need is very important to have a get together and soon .... Will keep talking thanks Viv xxxx
Great to hear of all these support groups. Your local ROCC will have some info maybe? You can get her number from Ovacome. I go to a support group at our local hospital in Southend, once a month. It offers refreshments, cake, chat, alternative therapy sometimes, relaxation, and is run by our wonderful specialist nurses. It's really a good resource. Hope we can get these set up all over the UK? Start a campaign!
My support nurse Karen is involved with Pandora's box ..but from what one of the other nurses was saying as people finish their treatment peole tend not to met as often and drop out of going ..... I want to get going ....
Lots of us go regularly .... we go to chat and help others and help with fundraising for the COPES group -- you can google it (COPES support group, Southend) I've been going for nearly 10 years and others are regular helpers/fundraisers/supporters. All have had gynae cancers of one sort or another. The ladies who are going through chemo or just being diagnosed get priority on reflexology, massage etc, of course. It's a lovely group though. Good luck with your ventures.
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What is the chance of losing your hair with Caelyx?
This bloody disease!
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