This bloody disease!: RANT alert Evening ladies... - My Ovacome

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This bloody disease!

JayGeeCee profile image
12 Replies

RANT alert

Evening ladies, I’ve just found out that a friend of my daughter’s mum was diagnosed with OC just before Christmas. She’s now in a hospice and has been told she has about 2 weeks. The disease has ravaged her, she’s too ill and too weak for chemo. It’s shit isn’t it?

I feel almost guilty for having responded so well to first line chemo even though was diagnosed as stage 4.

Feeling sad and frustrated.

Sending you all a hug.

Joy xxxx

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JayGeeCee profile image
JayGeeCee
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12 Replies
CallmeMum profile image
CallmeMum

Hi lovely,

Unfortunately that is shit, but at the end of the day it’s also pot luck! Don’t feel guilty for responding so well everyone is different, I was talking about hospitals ticking boxes the other day and said to my husband you can have two people exactly the same one can get on a trial the other can’t the one who gets the trial doesn’t respond to the treatment yet the other person might respond to that treatment but if you don’t fit that criteria you miss out! It’s because everyone is different and yet the hospital really don’t care about trying it on everyone! Xxx

coksd profile image
coksd

Its so sad for your friend this awful disease needs to be more aware of and GPs need more training on it as symptoms can be associated with other illness its so sad she got such little time and no chance of treatment xx

Purple-iris profile image
Purple-iris

That’s so heartbreaking. I’m lost for words.

Hate this disease, just devastates so many lives.

I know what you mean about feeling guilty, I often feel the same, also diagnosed stage 4 , in June 2016 and originally told I was inoperable. So many ladies that supported me on this forum are no longer here. And I seem to be hearing about more and more younger women diagnosed with young families. Just breaks my heart. Often feels so random, like we’re playing Russian roulette, they need to find out more as to why some women respond to treatment and others don’t.

Sending you a big hug. I also know that our teal angels wouldn’t want us to feel guilty but to make the most of everyday and makes me more determined to try and do all I can to make a difference.

Love and best wishes Kim x 💜

Neona profile image
Neona

So very sad.

Artgreen profile image
Artgreen

It’s so awful isn’t it. But survivor guilt feels bad and is not deserved. Everyone wants you to enjoy your life. Hugs

Alex x

LittleSan profile image
LittleSan

So very sad but please don't feel guilty. My friend's friend had lost her daughter to OC at a young age but her mum is always absolutely delighted when my friend tells her I'm doing well.

There is a well known phenomenon called survivors guilt though. Please be kind to yourself.

Sandra 💖💐😘

Di16 profile image
Di16

I sympathise with your feelings. One of my daughters has a friend whose mum was diagnosed with oc & they weren't able to help her. I think she lived for about 18 months, which was a lot longer than expected. Yet I was diagnosed 11 years ago, & am surviving my 5th recurrence. I felt guilty & sad when she was ill that I was in better health than she was. But we have no need to feel guilty. It's a difficult part of this disease. Di

Cropcrop profile image
Cropcrop

Big hugs back to you lovely. This disease is, indeed, shitty. There’s just seemingly no rhyme or reason to it. Don’t be guilty you responded so well and I do understand your frustration. Keep as well as you possibly can be lovely, I hope your friends daughter is peaceful and in little pain. Hugs and love ❤️Xx Jane

ZenaJ profile image
ZenaJ

Sorry to hear this Joy. It's so sad for her daughter and family. If only these things could be diagnosed earlier.

I know exactly what you mean about the guilty bit. I've had four friends and family die from different cancers since I was diagnosed and have to keep stopping myself thinking why them and not me especially when I'm at their funerals.

I'm glad you're doing so well.

Best wishes, Zena xx

Lyndy profile image
Lyndy

Hi Joy

One of the senior oncologists at my hospital once told me that OC does not play by the rules- of cancer or anything else! Some of us seem to get better breaks than others but it’s still a rubbish diagnosis to have. I try to make the most of every day to honour those who did not get the chance. xx

Caleda4 profile image
Caleda4

This is just awful for family & friends of the lady concerned. You must not feel guilty as this disease is just a lottery at times & diagnosis early is often difficult. It is very sad that nothing can be done for her.xx

JulieP1986 profile image
JulieP1986

I know what you mean about feeling guilty. After my final 1st round treatment last year, I went for a Spa Day for my friends 50th. The young lady doing my pedicure was obviously intrigued by my beanie hat and was asking me about my cancer. I told her I had successful had treatment for stage 4 Ovarian Cancer. For her to advise me that her Mom had been diagnosed with the same thing just before the previous Christmas and had only made it to mid January before passing away after being told there was nothing they could do for her.. Oh the guilt, I just kept telling her how sorry I was, I felt so bad about sitting there looking the picture of health whilst she pampered me, knowing she must have been thinking why couldn’t she be doing this for her Mom. I felt so sorry for her. I wanted so much to give her a big hug but knew that would set me off which she certainly didn’t need. My heart goes out to your daughters friend family. x

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