A Positive Encounter

[Dee345]

Last week I met up with a lady who had OC in her 20's. She apparently was told she would not likely survive. She's now in her late 40's, has a demanding profession, travels a lot etc. I doubt she would be on boards such as these as OC is no longer part of her life. I like to think there are many more like her out there

[Katmal-UK]

Im certain there are Dee. X

[Luk4ward]

The amount of times I have heard that sufferers have been told that they are terminal and are around years later to prove the diagnoses wrong is inspiring.

[mrist1 in reply to Luk4ward]

Hope this is true I was told today my cancer is growing even under the cargo taxol it started growing in early July I am guessing my dr said more or less that I might not have very much time. He is starting me in Doxil? I have ascites also

[mrist1 in reply to mrist1]

*carbo

[hunkydory in reply to mrist1]

Do not give up. Just because a doctor hints that you have little time does not make it a fact. Many people have been told that and still won the battle. Don't sit around thinking about bad thoughts. Keep trying to do some of the little things that give you pleasure and make you happy. Please try to laugh once in awhile as laughter is the best medicine. I am praying for you and sending blessings and hugs.

[mrist1 in reply to hunkydory]

Thank you

[Dee345 in reply to mrist1]

I'm sorry you are going through such a worrying time. I agree with Hunkydory - don't give up, find out what other chemo options are out there for you if the first ones don't work. Maybe it will involve a 2nd opinion. You're in my thoughts as you struggle with this. Sending hugs

[mrist1 in reply to Dee345]

Thank you Dee, we are waiting on mayo to call.

[Dee345 in reply to Luk4ward]

So true Luk4!

[Caroles1]

I think there are Dee and I wish they would get in touch to give us all hope.

We all worry about the what may not happen(understandably),but I'm sure there are masses of ladies who don't know we exist,or who don't want to join in anymore because they are ok and don't want to be reminded (understandably too).

I am ok for the minute but like to join in to give advice if I can,relevant to what I have experienced and if I re occur I know where to come for help and advice

Carolexx

[Dee345 in reply to Caroles1]

I agree It would be great if we got to hear about more long term survivors! I hope you continue to do well xx

[Howick01]

My friend's sister has been surviving for over 40 years-she had surgery then radiotherapy x

[hunkydory]

YES Dee there are survivors and I am one of them and I am here. I had stage 3 colon cancer and ovarian cancer in 2004 and so far no recurrence . I thank God for this.

I do not post often but I do follow conversations on Ovcacome and I try to give encouragement and support where I can. I hope this helps others. I also like to keep up with the latest cancer treatments.

My 34 year old daughter has Myatsthenia Gravis with thymoma and has had surgery and is doing chemo now. She is the main reason I have returned to support groups.

Do not give up. It may be a hard battle but it can be won. Never give up . There are lots of survivors in the world but they just don't post on support groups and it is sad that they do not give support and encouragement to others that are still fighting the battle. Prayers and hugs to you.

[mrist1 in reply to hunkydory]

My Dr today isn't that hopeful he told me and my husband that it doesn't look good. I have 3-c high grade . He is going to try Doxil

[Caroles1 in reply to mrist1]

Don't dwell on this love, some of these oncs are tactless and personality less.

It's never over till it's over and I think a fighting attitude pulls us through.personally I would take it as a challenge if I felt he was writing me off,haven't heard of Doxil,but it could be your miracle drug,so grit your teeth Hun and fight the good fight,

Let us know how you get on

Carole xx

[mrist1 in reply to Caroles1]

Thank you Carole

Mary😊

[Dee345 in reply to hunkydory]

Thank you so much hunkydory for your encouragement, and for being here to support others going through this craziness. My wish for you is that you remain cancer free and live a long and healthy life.

I'm so sorry to hear that your daughter's going through cancer treatment and wish her a full recovery also.

Prayers and hugs to you both.

[hunkydory in reply to Dee345]

Thank you Dee

[IrishMollyO]

Hi Dee

Lovely to hear a positive story. As others have said there are probably a lot more survivors out there that we don't know about. If they knew how important it is for us to know I'm sure they would just once let us know . Also I am sure hospitals have to keep records of those who survive. The files are probably lying in some little known statistic office gathering dust !

[Bonnie11]

I agree with all the above...and get inspiration from all the positive stories. As a result of this conversation I will stay in touch.My aunt had ovca at 50 and died at 85 ...that's my plan😊.i have 3 more chemos to go and can't wait to get on with my life. As I near the end I am getting increasingly tierd but soooo impatient. Rock on October.

[Dee345 in reply to Bonnie11]

Chemo got very tiring for me towards the end too, and I absolutely get the impatience. I had IP as well as IV and I'd heard so many times that only 40% of women are able to complete it. Well I was one of them! Good luck with the rest of your chemo and with getting on with the rest of your life!

[Yoshbosh]

How lovely, Dee!

The only 'real-life' cases of OC that I know of (i.e. not all you lovely ladies on 'tinternet), are long term survivors. One who had it at 18 and is now mid-thirties, and three who had it in their 40s and are now in their 70s and 80s (the sharp-as-a-tack 80 year old even forgot she'd had it until she got talking to my mum!). Based on these experiences, I didn't even know that OC had a high rate of recurrence - I thought it was one which went away for good if successfully treated. I'm counting on being in this category too.

[Caroles1]

Lovely to hear all the positive stories,it certainly gives me hope,I automatically think I will re occur,but I think I will go with the more positive option,

Hope all you ladies do too

Carole xx

[Dee345 in reply to Caroles1]

Likewise Carole.

Hugs

[Di16]

I know an older lady who was treated for OC 27 years ago & has had no recurrence

Di

[Dee345]

I love it! Thanks Di!

Slunk out of my gyn/onc follow up yesterday feeling rather defeated. Nothing of any significance has changed, but just the conversation on rates of recurrence, needing to watch certain things etc etc. I ask a lot of detailed questions....

So while I consider myself realistic, it's a great boost to hear positive stories.