Mature teratomas - has anyone had any joy with ... - My Ovacome

My Ovacome

17,717 members19,968 posts

Mature teratomas - has anyone had any joy with anti-hormone injections shrinking tumours?

Honey3 profile image
3 Replies

My daughter had a 20cm mature ovarian teratoma removed last May. she has since had her appendix removed (the tumour also contained a carcinoid tumour so the appendix was removed because it is one of the first places carcinoid goes), some lymph nodes in the pelvis, a second smaller mature teratoma from behind the other ovary, the omentum and two or three smaller nodules - all benign. Just recently a couple of very small tumours which were left behind in August (because of their positions) have grown enough to be of concern. The surgery to remove them would be very dastic - a full hysterectomy and removal of part of the large bowel, resulting in a stoma. The drs are keen to avoid this surgery as she is only 17, but as they explained they would be keen to avoid it at any age! We are waiting to see how receptors in recently removed tissue react to anti-hormone treatment. if they rect positively then my daughter will be given injections to deplete her oestrogen levels, sending her into a temporary menopause state. The lack of oestrogen should shrink the tumours. Has anyone else had experience of this, positive or otherwise?

Written by
Honey3 profile image
Honey3
To view profiles and participate in discussions please or .
Read more about...
3 Replies

I'm concerned for you that there have been no answers to your question, although I have no experience to offer. I suppose this means that this treatment is v unusual.

Just to send v best wishes to you and your daughter. She is young, so hopefully that is on her side whatever treatment she undergoes.

All good wishes,

Isadora.

Honey3 profile image
Honey3 in reply to

Thank you for your reply! Today we have had the go-ahead for the injections which means the receptors responded positively. I think this treatment is more common with endometriosis from what the consultant said. We will have to wait three or four months to see whether it has worked.

in reply to Honey3

It goes without saying: I hope it works! Must be good that the receptors responded positively.

Wishing you both all the best.

I.

You may also like...

Has anyone else had this?

At that time they gave her \\"months\\". Her cancer is low grade, but her tumours are calcifying...

Any one else have shrinking tumours with high CA 125?

has had the same. The midway CT scan shows the tumours have reduced but CA 125 still over 500. the...

Has anyone had their spleen and gallbladder removed during debaulking surgery?

you manage after surgery? My mother is still in great pain, 12 days after the surgery. She is...

Dear daughter's results from op

biopsies showed that glial cells from the mature teratoma are still present. Basically the situation

Has anyone had a Colostomy bag after tumor resection?

have a re grown ovarian imature teratoma that I am waiting to have removed. Chemo caused it to be...