After 18 weeks on the Compakt drug trial unfortunately my scans from Tuesday are showing increased disease and my CA125 has gone up to 71. Having worked initially , the drug combination is now no longer working and I have stopped the trial. As ever I have no symptoms from the cancer and so never know when I go for my scan results whether it will be good news or bad news. I was so disappointed. Fortunately, the Royal Marsden team have come up with another trial for me to try - an anti-folate drug. It is another phase 1 trial and involves an hour-long weekly IV treatment.
Gutted that the parp inhibitor/AKT inhibitor combination didn't work for very long but so pleased that they can offer me something else. I will need to have a washout period and will start the new trial on 20 October.
Meanwhile I am feeling very well and have some nice things planned for the next few weeks - spa trip to Champneys end of Sept, trip to Pitlochry mid October, giving my first presentation about hereditary ovarian and breast cancer (to 165 people - scary but great!) on 18 Oct, and spending lots of cuddly time with my new grandson.
Best wishes to you all.