Last time I posted I mentioned that I was being put forward for a drug trial for a new treatment for low grade ovarian cancer.
My slides have been reviewed and accepted. I have also had my heart scan, eye test and my biopsy this week. I am just waiting to find out the results of the randomisation process to see which arm of the trial I will be on.
Good luck with this trial xxx
I'll be really interested to see how you get on as I'm also Low Grade and it looks like I will be needing more treatment and they are talking about a possible Trial at Addenbrookes. I've looked into it and Addenbrookes are doing this Trial. Can I ask you what the biopsy involved ? Many thanks Kerry x
I have a lump just below the skin in the pelvic region so the biopsy involved a big needle and a local anaesthetic. The biopsy is mandatory for this study but I think if they try and they fail because its not safe/possible you can still be allowed onto the trial
Ok thanks for that. Xx
Good luck with your trial. All the best!
Wishing you all the best xx
Wishing you all the best . Keep us posted xoxo
Good news, from what I read of trials you will have a lot of care and attention and regular checks all of which is good.
I heard this week that I didn't get into the clear cell one which is disappointing and I'll be asking why this week as I seemed to meet the criteria.
Good luck with yours
Clare xx
They may bot know. I got turned down for a trial back in 2014 and was never told why. My oncologist also was bever told
Ah that's interesting, thanks x
Hi Clare, sorry to hear you haven't been able to get on to this trial. It's hard enough to fit the criteria but to fit the criteria & still be refused must be even harder. I hope they can offer you another trial or chemo that will zap it.
I know you will have your big fighting nickers on at your next appointment & won't let them fob you off. Good luck take care Cindyxx
Hi there ..
I'm glad it's so far, so good. I was wondering if you prefer the hormone treatment if you don't get on the inhibitor?
I read that you don't have to have a biopsy if you choose not to. They're using the tissue to find bio markers to see where the drug is most effective.
I also read that, if you get into the chemo/hormone arms and the disease continues, you can then be given the inhibitor which is something, isn't it?
Xx
I have already had letrozole so I can't have it on the trial. I think the alternate is caelyx
Are you allowed Tamoxifen? If not, I think I'd prefer to get the targeted drug.
Tamoxifen is one of the alternate treatments. The computer decides which arm of the trial I am on
If I get out on the alternate treatment and it doesn't work then you automatically get the option of trying the trial drug
Good luck and my best wishes xx
Hi there, all fingers crossed that it goes well on your trial. Good luck take care Cindyxx
That is great news I hope all goes ahead as planned and look forward to updates
Almost there.... good luck!
Every best wish ....you do get very well looked after on a trial , you become very special to them !
Do you know name of drug for the trial?
The trial is called the logs trial and the drug involved is called trametinib. You can read more about it here
LOGS Trials
Cabozantinib (XL184) Trial Drug - update
Clear Cell Trial Update 
ATARI trial my update 
Update on ICON8 trial
