I haven't posted for a while but been busy with OCTOPUS trial, which in the end didn't suit me.
I just wanted to ask you all a very important question. Where would you wish to spend your end of life care? Would you rather be at home or being cared for in a hospice? I ask because our local Hospice Sue Ryder Nettlebed, is planning to close in the next eighteen months to two years. They say they are selling their beautiful Jacobean style building which stands in 27 acres at Nettlebed near Henley-On- Thames. They have planning permission to convert the building into several luxury flats and probably build luxury homes in the beautiful gardens. How much money do you think that will bring in!
They are planning to provide more one to one care in the community which according to them is what 70 percent of people want today after conducting their recent survey. Who are these people? I have spoken to a considerable number of people about this issue whilst conducting my own petitions and surveys and there wasn't a single one who agreed with them.
I use the facilities of this Hospice every week. The staff and volunteers are wonderful and have given me so much confidence to go forward and accept what this dreadful disease has throwing at me and my family. I was content in my end of life care plan which would be spent at Nettlebed, where so many of my friends have passed away, pain free with peace and dignity. I now wish I had never heard of Sue Ryder because I feel they have offered with one hand and taken away with the other. My plans have been shattered and once again I am very frightened about the future.