Masses detected on both ovaries, CA 125=34. Pain, bloating, and bowel issues. Want me to wait for CT scan and hysteroscopy in one month.

[Nanbear69]

I am an American/British 53 y/o woman living in UK, and waited three weeks to hear my case needs to go to a doctor MDT panel for directions to understand if just monitor, or need to get biopsies, etc. I have worked in healthcare in both countries, and understand NHS pressures. I feel I know my body well, and there is research to say the bloods is not a true marker alone. My family in America feel I need to push for a biopsy asap, and not wait, any suggestions? Should I go through BUPA, husband's insurance? I don't want to wait if worst case.

[Lovedogs41]

Hi

If your able to then I would certainly be seen privately if it means you get a diagnosis earlier.

The NHS is on its knees and unfortunately at the moment we must push and do everything we can to ensure we get the best care possible xx

[Nanbear69 in reply to Lovedogs41]

Thanks so much, I will get onto BUPA this week. So appreciate this I am quite worried.

[Sashay2020 in reply to Nanbear69]

Sound advice from Lovedogs. I do hope you are able to have the necessary testing soon, and the results put you mind at ease.

Best wishes from New Orleans, Louisiana

Sashay

[Katmal-UK]

Personally I would push to go thru yet husbands insurance if you are able. Best wishes x

[Newbery3]

I waited and had biopsies and waited again then had more biopsies then waited aging all in all 10weeks messing around before starting chemo! I'm stage 4 advanced hgsc and 51 , anyway was told then that I had to have chrmo 1st for 4 then operation but when it came to the operation after 4 chemo's they had no capacity!! That was final straw so got 2nd opinion privately and payed for the operation privately, if you can get seen through your husbands insurance then do it now! Don't be afraid of offending anyone, my oncologist was fine with it and after op I went back on nhs for last 2 chemo's. It was the best decision I've made as the surgeon in London said she'd managed to get all disease out 😊 hope you get sorted and good luck xxx

[delia2]

Hi. I agree with the others. Your case sounds quite urgent and given you have the means to pay privately you should. Good luck! Xx

[Nanbear69]

Thanks everyone, I feel your beautiful support already. BUPA has got me a consultant already, and feel i am on the right path finally. I wish you all well, and keep fighting the fight.

[SopSinger]

Given the current pressures on the NHS, one month is very good. I wouldn't bother going private, it will take almost as long and you'll be shunted back to the NHS at some stage. I had to wait 3 weeks to see the gynae-onc consultant, as he was on holiday when I was diagnosed, but I'm still here 16 years later, no recurrence. I used to live in the States but was back in the UK when I was diagnosed. One of my American friends (who later developed major mental health problems) rang up and banged on at me to get treated quicker, or to go back to the US, but it wasn't necessary and could have caused me problems.

[meadowgirl]

I saw local gynae oncologist who said I needed biopsies but couldn’t tell me when it would be done on NHS. I asked her if I could get the biopsies done privately and return to the NHS. She was fine with this. She asked me where I wanted the biopsies done, so I asked her where she would go and she said the Marsden.. I looked up the surgeons she recommended on the Marsden website then got my appointment the following week. Biopsies we’re done 2 days later. Don’t forget to ask if they will do genetic testing on the tissue samples as this information can often guide treatment decisions. The biopsies were done on a Saturday morning, when the surgeon also removed both ovaries, by keyhole. I was only in the hospital for 6 hours. I hope this information is helpful. I must just add that I needed further surgery because mine had spread. I got my results by telephone about 5 days later.