Morning ladies, it's been a while since I posted, last time I was in a really bad place , I'm stronger mentally but not great physically. I'm not long home from hospital, where they drained off 6.2 litres of asitis fluid, thank goodness my Macmillan nurse stepped in and got me admitted, GP was treating me for diverticulitis, I was in agony. They also found some pleural effusion,which is causing me a little discomfort. I had decided against any more chemo but my Macmillan nurse said it often dries up the fluid in the lungs so no drainage needed, so I'm booked in for gemcitabine and Carboplatin on monday I'm dreading it because I always get every side effect going. I did get a lot of advice and other opinions when I was in hospital because my own oncologist was very negative and have decided I've about had enough of it all , having made the decision I feel much calmer family, have been wonderful,and very supportive
I hope I haven't brought any of you down on this rainy Thursday ,but I though some you would want to know how I was doing
Cheryl xx
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Cheryl how lovely to hear from you. You've offered me some very helpful words of advice these last few months and I've been thinking about you a lot these last few weeks, since your last post. I'm so pleased you're in a better place mentally, but sorry that you're not so good physically. Hopefully you will start to feel more comfortable now that the ascites has been drained and can crack on with chemo to sort that pleural effusion. I can understand your hesitation in having chemo again as I know you've struggled with it in the past (it's bloody shit !!) but you're giving it a go and I admire you so much for that. It sounds like you're getting wonderful support from your family and we're all here for you as well. I'll be thinking of you on Monday, ❤️ and 🤗 Kerry
I don’t post very much, but I have been thinking about you and I have said prayers for you. I’m glad mentally your feeling better and I hope physically you get better. I’m glad your now home. Sending you hugs and prayers.
Thanks for updating us Cheryl. I’m glad to hear your ascites was handled and that you have returned home. I have been thinking of you and I hope your planned chemo dries up the pleural effusion so that you can be comfortable. I have my next labs on November 8th, so I will know pretty soon if this last line of chemo put me into remission. I’m hoping and praying for us both!
so glad to hear you’re in a better place mentally at least Cheryl , sounds like you’ve had quite some ordeal , must have been aweful with so much fluid! Positive hat 🎩 on now though, you can do this & definitely the right decision.will be thinking of you! Big hugs Dee X
I wish u much happiness with your lovely family xx i hope the chemo doesn’t give you too much jip! And it always feels easier when we have made good determined decisions and feel back in control a little xx Love and hugs
Hi. Thanks for writing. I’ve been worried about how you were doing. It’s really rough what you’ve been through. I can’t believe they were still misdiagnosing your problem after all this! But it sounds like you got some proper attention in the hospital. I hope the chemo helps you to stay comfortable. I’m glad your family is supportive. I’m sending hugs. Xx
Thank you Delia, I'm so thankful for the Macmillan nurse,she did more in three hours than anyone else had done in three weeks. My oncologist didn't even tell me that some Asitis had showed up on my last MRI, he was too keen to be negative and bring the conversation round to time scale , I'll have a lot to say to him when I see him next . when I said about the pain he said ,you get pain with cancer . He let me down
The late Sue Pirie (wonderful Aussie contributor to fb forums)used to refer to all OC related trouble as ‘this buggery bollocks’ and I think this neatly describes how the person still shines through, despite all that OC throws at us. Certainly true in your case Cheryl xx
Sue was utterly hysterical, you'd have loved her. I was gutted to miss out on meeting her when she was in London - she was sick the day we were due to meet up. I'd have paid for ten afternoon teas in Harrods to have that opportunity back!
I’ve also been thinking of you.Wishing you all the best with the chemo,you never know,it might be the combo that hits it hard for a while.I use high strength cbd oil from cbd brothers online and found it helped me significantly with chemo side effects perhaps try taking it alongside.My oncologist was of the opinion that it can’t do any harm xx
It's good to hear from you. I wondered why they cant drain your pleural effusion. I had mine drained it was over 4 litres, it came back within 2 weeks so drained again then had the pleurodeses (sorry dont know how to spell it)_ procedure. I didnt find the draining too hard tho was in hospital for a week and the the procedure was not uncomfortable and I felt so much better. Only mention this as you are not keen for more chemo. I think of you often and send you positive thoughts.
Thank you Lizzieanne, didn't even mention pleural effusion in hospital ,saw it on the discharge letter when I got home , going to have the first cycle then talk to my Macmillan nurse about it , although they treat the Asitis and got me comfortable I don't think I had the best treatment.
Hi Cheryl, I have been thinking of you lately and wondering how you have been doing. You poor dear, going through so much lately. I hope that you will do alright with your next chemo and not feel poorly with the side effects. I will keep you in my thoughts and prayers, Donna Sending a warm hug 🙏🥰
Thank you Donna ,I'm very tired at the moment , needing a rest every afternoon ,I'm dreading the chemo on Monday but my eldest daughter and grandson are coming for the weekend so that will take my mind off it. Sending you love .
Oh Cheryl, what a rollercoaster ride you're on. At least now you have the Mac nurse to sit next to & hold your hand. Yeah give that onco the flick, what a loser he's turned out to be. You don't need people like that in your life. Take all the love & hugs you've been sent (including mine) & face that chemo head on with all the strength you can find & kick oc's arse. Definitely try the CBD oil. I've heard only good things about it. Sending you love & hugs & so much positive energy. You go girl.
So glad you are in a better place mentally and will try the chemo to dry up any residual fluid. I too like everyone else was thinking how you were coming along. This disease is so very difficult to fight as not one treatment fits all so very frustrating too! I am hoping that this will bring much need relief from pain.......yes it is difficult but you are strong and can do this!!!
yes don’t I know it having my 5th treatment of cisplatin but not the gemzar as blood platelets were too low. Have to wait a week ! Next month will have all six on board then pet scan Gosh this is so hard ! But we can do it!
Shame you couldn't have the Gemzabut I've heard lots of women have problems with bloods , you'll be relieved to get them all done , really hope the scan shows good news . I had my first Gemzar / Carbo Monday, slightly queasy today but had meds , will see what tomorrow brings .
Hi Cheryl I just wanted to thank you for your diligence in posting on this site and the effort you go to post even when not feeling well. I don't post myself yet. Maybe I might get into the way of it eventually! Took a while to get into replies 😆But I find great comfort and strength in reading posts on this site. I have read all your posts on your journey. Thinking of you now beginning chemo on Monday and will say a wee prayer that it does the trick and is easy 💕
Thank you so much Mariej ,so kind , I sometimes think I might say to much and distress people , I know there are people who have done better than me and some not as well , I'm always grateful for advice and virtual hugs ,we all use the site in different ways according to how we can cope ,that is what makes it so helpful .Sending you love and strength.
what a crappy oncologist Cheryl. Youvtealky have been through it. I’m so glad your macmillan nurse was more effective than all the doctors. Sending you hugs for the chemo and hope it all goes smoothly. I don’t know if you’re a fan of the complementary / off label drugs approach but I’m having fewer side effects with Jane McLelland’s How to Starve Cancer protocol than the chemo.
Don’t post much but do keep an eye on the forum. Glad to hear that you’re feeling better mentally, at least & hope by now that the chemo has helped you physically. Take care. *Hugs*
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