Carbo /Caelyx

[Caleda4]

Hello lovely ladies,

I hope that you are all keeping as well as possible, & that you are all enjoying this warmer sunny weather that has arrived.

Well I had my first carbo/caelyx on Tuesday 3 May, which all went pretty well apart from the fact that my appointment was 11.30am. and the caelyx did not arrive from pharmacy until 1,40pm. so all in all I spent 6 hours at the hospital, but hey ho at least one of those is out of the way now. The good news is that my first round of chemo which was just carbo, has pushed my CA125 from 232 down to 103 which I was surprised about. I have been given 5 Filgrastim to inject myself with, the first being today on day 3, these are to make more white blood cells from the bone marrow, so that is interesting,hopfully they will do the business.

Yesterday we walked and i felt quite good really. Today we spent the morning in Broadway,Worcestershire & stopped for the inevitable drink and cake. After that we headed back towards Malvern and stopped for lunch. Now back home relaxing.

Take care ladies. Caleda

[Saintgermain]

Hi Caleda4,

I'm in the states and had Carbo/Taxol 6 treatments my Onc told me its a good sign when the CA125 comes down especially after your first one. Mine was 4300 and post treatment has stayed around 6 I hope with each treatment it gets lower and lower. Hugs from Chicago

[Caleda4 in reply to Saintgermain]

Hi,You are doing really well,so long may that continue. I am hoping this figure will go down more following further treatment.

Thank you for your reply. Hugs to you in Chicago.x

[Lyndy]

Oh no! I have had that wait for the drugs to turn up from pharmacy…what a drag! Glad you are through to the other side. Filgrastim injections are usually the last thing you want to do but they do support your levels..so keep going… best of luck xx

[Caleda4 in reply to Lyndy]

Hi Lyndy,I hope that you are keeping well. Yesterday was my first attempt at doing the Filgrastim but all went well thankfully,and if they work then that is an added bonus. Tahnk you for your good wishes. Have a good weekend. x

[delia2]

Hi. That’s excellent news! And I am glad you’re able to do some enjoyable things in the sun! When I had carbo caelyx I was fine the day after then pretty tired for five days. Be sure to moisturize hands and feet! Xx

[Caleda4 in reply to delia2]

Thank you Delia, I have been moisturising feet and hands,so hopefully they will not peel.I hope that you are ok. Have a loveley weekend.x

[Lizzieanne]

That's great Caleda and how you've walked, enjoyed Malvern and Broadway. I'm in Warwick so know both well but havent visited since start of lockdown with the good weather coming think it would be a nice day out. Havent heard about the injections, how is it decided that you will need these. May the chemo continue doing a good job and you to thrive for more coffee and cake. A girl after my own heart x

[Caleda4 in reply to Lizzieanne]

Hi Lizzieanne,You are not that far away really. We have not been to broadway for several years now,but years ago I lived in Cheltenham,so do know the area. It was so lovely to see all the trees with blossom etc. We now live in Upton upon Severn,which we are really enjoying. I have a daughter in Cheltenham so it is great to be nearer to her.

Regarding the Filgrastim injections,i did not know that they had been prescribed until I was ready to leave the hospital,when the staff nurse said, I had 5 of them. She did explain what to do, & also said that if i could not do them then they would arrange for a district nurse to call. Anyway I did the first one yesterday & it was easy really,as they are prefilled syringes, and when finished you drop them in the sharps box which they gave me. I have seen a couple of ladies on here mention them before, but have never mentioned them to my Oncologist. I am guessing they were given to do with the Caelyx. Hopefully they will keep my white blood cells topped up.

How are you keeping? I hope that you are feeling ok. Take care, & have a good weekend. x

[Lizzieanne in reply to Caleda4]

feeling quite good but the usual anxiety awaitingscan results. We love Upton on Severn often take our sandwiches and coffee and sit by river have even done this on a sunny day in winter then go on to Malvern. Keep well x

[Caleda4 in reply to Lizzieanne]

It is really horrible waiting for scan results. I will keep my fingers crossed for you. I am glad though that you are feeling quite good. We try to walk by the river every day if we can.I have found the past couple of days I have felt nauseous in the morning, & believe it is the Filgrastim that is causing it. Later in the morning I feel fine,although a bit slower than normal. Take care.x

[Saffery1 in reply to Lizzieanne]

I've always been given filgrastim injections to take home after chemo sessions. It was done as a matter of course from the beginning, chemo is very hard on blood counts.

[Veria]

Hi Caleda,

I started carbo/ caelyx last Tuesday. This weekend I have terrible abdominal pain and nausea, did this happen with you. How long is it likely to last.

Thank you for any replies, I feel pretty awful.

[OvacomeSupport Partner My Ovacome Team in reply to Veria]

Dear Veria,

Thank you for sharing your post, I am sorry to hear that you are experiencing abdominal pain and nausea.

I would advise that you speak with your clinical team through the 24:7 chemotherapy helpline and they will be able to offer advice and some guidance.

You mentioned the treatment that you are currently on, if you would like to read more about this you may be interested in our Chemotherapy information booklet. I have shared the link below.

ovacome.org.uk/chemotherapy...

Please know we are here to support you so if you did want to have a chat and talk anything through you can email [e-mail] or call our support line on 0800 008 7054 Monday to Friday between 10am and 5pm.

I really hope you start to feel better soon.

Best wishes,

Sorcha

Ovacome Support

[Caleda4 in reply to Veria]

Hi Veria,

I am sorry to hear that you are suffering after carbo caelyx. Fortunately I did not suffer pains in the stomach,but did suffer nausea,but was given anti sickness which worked for me.

You should get in touch with your team as they will be able to advise you. They may reduce your next dose.

whenever i have had chemo i always drink a lot of water and continue to do so once i get home.

I hope you feel better soon.

[Veria in reply to Caleda4]

thank you for your help, I did ring the emergency line….unfortunately I had a reaction to it and have been in hospital since Sunday. Good luck with your treatment.x

[Caleda4 in reply to Veria]

Ssorry to hear that you are in hospital,but hopefully you won't be there to long. Wishing you well.