Still breathless

[27-359]

Last February I finished my second line of chemo and soon after developed debilitating breathlessness. It is really affecting my life, but it seems there is nothing I can do about it.

My haemoglobin is 99 which is not excessively low, I have had a chest X ray, ECG, CT of thorax, abdomen and pelvis and blood test to check iron and B12 levels. As far as the oncologist is concerned there is nothing too concerning.

However, I have received a report following our latest consultation, and it states that I have "persistent macrobiotic amaemia" which I googled, and discovered that I have fewer but enlarged, red blood cells. Since the oncologist has not suggested any way of improving this condition, has anyone on here come across this condition? Even going upstairs, or making the bed leaves me short of breath, and I need to sit and rest even when doing small household jobs.I

Jenny

[delia2]

I’m not sure but maybe B12 and folic acid? I might push for a blood transfusion because you’re symptomatic even though your hemoglobin is above the level where they give transfusions normally. Xx

[Lyndy]

I agree with Delia2, you should push for something to be done. You may have to get assertive with your oncologist…or take a family member with you who can say how it’s affecting both your physical health and well-being xx

[27-359 in reply to Lyndy]

Unfortunately, I don't get to actually see my oncologist as all consultations are over the phone now. I think it is harder to demonstrate how something is impinging on your health over the phone.I have a telephone consultation with the nurse this week, so I will try to talk to her.

Jenny

[MarleyZ]

Had something similar on my first chemo ended up having blood and magnesium infusions along with Vitamin B capsules, sometimes even with all of that just think the body says rest ( tis bad when a snail overtakes as I told someone that's how it felt on those days ) rest and take it easy your body tells you what it needs but have that convo with your onocology team could be you just need a infusion. Best of luck to you.

[Neona]

I am exactly like this although it varies in severity. It started after frontline chemo no. 3. Recurred numerous times and is more or less permanent now. Definately worse when magnesium very low and when creatinine high.

[27-359]

I asked about my magnesium levels and was told that it was ok. Have you tried taking any supplements to try to improve the situation.I am on a par p and am feeling fine at present. I really don't want to feel that going for a walk or exerting myself slightly is too much for me.