On to another Chemo Drug - Topotecan or also known as Hycamtin

[PCCDaisy]

Well Hello,

Finished two treatments of Doxil/Caelyx and it wasn't for me. My CA 125 went from 198 to 521 which is the highest I have ever been. My Oncologist was like, yep this isn't working. Did get a CT Scan and showed progression in my abdomen but thank God not in any major organs. So now will be on Topotecan. Which is once a week for three weeks ans then off one. Am not familiar with this one at all. Was wondering if any of my teal sisters ever took this, and what I need to watch for and if it worked.

Tomorrow is my first infusion, needing prayers for this one to destroy these buggers.

Cheers 🍻🥂🍻

Shelly

[SASSY196]

Hi Shelly,

I was thinking about you today and wondering how it was going and am saddened that Doxil/caelyx not the one for you. I'm so sorry there has been progression in abdomen but very glad not in major organs. I don't know about the chemo you have mentioned but you will def be in my thoughts and prayers. Hope infusion goes well tomorrow and starts to kick the f***** into touch. I have scan results for carbo/caelyx midpoint tomorrow. Stay strong like the lady you are.

All the best

Sara xxxxxxxx

[PCCDaisy in reply to SASSY196]

You will be in my thoughts and prayers too..

[Lizzieanne]

Sending positive thoughts to you. Let us all know how you get on. Xxx

[Newbie_2020]

Yet one more challenge thrown at you. You can do it! I hope these news infusions will give all the best outcomes. In my thoughts and in my prayers xx

[Lyndy]

Good luck Shelley! ❤️

[Jacky5]

Really sorry you didn't get a good response with the carbo/caelyx. I can't help you with info about Topotecan I'm afraid but really hope it goes well for you.All the very best

Liz.x

[JustKBO]

🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻x

[bamboo89]

I've never heard of this drug before you mentioned it, so can't say how it is as a treatment. I checked the McMillan site, and it lists the usual side effects with most chemos, but nothing specific.

Hope it works for you and isn't too awful to take - its apparently available in pill form too. Please let us know how it goes and good luck with it

Miriam

[PCCDaisy in reply to bamboo89]

Will do, and thanks for doing research for me...

[delia2]

Hi. Sorry the doxil/caelyx didn’t work but at least the cancer didn’t spread too much. I don’t have experience with topotecan either. Good luck with it! Sending positive vibes and hugs.

[Gemmyw]

Hi Shelly,

Sorry to hear Caelyx didn't work for you. It wasn't much help to me either and it's a real blow having an option off the table.

Are you in the US? I think Topotecan is more readily available there. A lot of us on the board are in the UK where it doesn't seem to be available on the NHS at the moment. I'm in the UK myself and am being treated privately. My consultant suggested Topotecan might help me, but my insurer won't authorise it.

Good luck with it. I hear it can be tough on your bloods x

[PCCDaisy in reply to Gemmyw]

Hi Gemmyw,

Yes I am in the US, basically we are going down the list until something takes and works.

[Gemimablackvelvet]

Good luck with the new chemo Shelly. I say a little prayer 🙏 for you. Angela x

[Supermary]

Good luck Shelley!!

I don’t know about that drug

Ask in some of the other forums

Did they ever get you the pathology report ?

Sending hugs

Margaret

[Meridian14]

Keeping everything crossed for you, Shelly.

Lisa x

[Supermary]

Reach out to Fishfinger4She seems to have taken it last year

[testarossa71]

Sending positive thoughts your way, and hope that this works for you. xx

[cath_koala]

Sending many hugs and love xx

[Worsuz]

Hi PCCDaisy. How did you get on with the Topotecan? My wife has just been offered it as an option. She has already had a heck of a lot of treatment. Hope you are doing well x