Ovarian cancer stage 3.: I have just found out... - My Ovacome

My Ovacome

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Ovarian cancer stage 3.

murielw profile image
17 Replies

I have just found out cancer as spread.Taxol as been suggested each week. I have been told this will make

me very ill. Is there any one who as had Taxel ? if so can anyone give me help so I can make up my mind what to do when I see consultant.

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murielw profile image
murielw
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17 Replies

Hi I have had weekly Taxol and it was not too bad the only problem was hair loss it is certainly worth thinking about keep fighting I do and it's worth it for the good times and they do happen. I was diagnosed 6 years ago and and all the cymo has been worth it

Regards Janis

murielw profile image
murielw in reply to

Thank you Granis.Yvonne

daisies profile image
daisies

Hello. The last time I was treated with Taxol it was given for the first 3 sessions on a weekly basis, and I certainly, preferred it that way. I thought it was easier on my body.

Anyway, whatever decision you make, I wish you all the best.

Daisies

francescahannah profile image
francescahannah

I had weekly taxol as 5th line treatment starting last January and I found it easier to tolerate than other previous treatments. I hardly had any nausea but did lose my hair. Generally I felt ok and was able to get on with life fairly well. It also had good results. So for me it wad good. I Hope all goes well for you

Francesca x

apopkaman profile image
apopkaman

Hi my partner had taxol over the years she had no problems with it I think it depends on the individual and how you body can cope with it trevor

blue100 profile image
blue100

Weekly taxol was by far the easiest chemo I have experienced. For me I had no side affects apart from the hair loss. At no point was I ever told that weekly taxol would make me very ill. Did you have carboplatin/taxol during frontline chemo and maybe had a bad reaction? We are all different and respond to chemo regimens differently. Research "weekly taxol" in the search box above or google it ...it may not be as bad as you are expecting. Or speak to your CNS or GP who can advise you further.

Good Luck

murielw profile image
murielw in reply to blue100

I had Carboplatin on its own last year, but the cancer is growing again . This is why weekly Taxol as been talked about,thank you for reply it realy helps.Yvonne.

LesleyGreengran profile image
LesleyGreengran

I haven't had weekly taxol myself but know people who have and have been well on it. I've been told I'll be on it myself at some time in the future so I follow posts on it as well as talking to people I've met in the chemo unit.

murielw profile image
murielw in reply to LesleyGreengran

Thank you Lesley, my mind is a lot clearer now. Yvonne.

gina profile image
gina

I had weekly Taxol for 18 weeks and found it to be a really good regime .I never felt ill and found it to be the best so far. I did not loose my hair as I used the cold cap every time. This may be worth a try if it is available to you.

thesilent1 profile image
thesilent1

Hi, sorry you have to face this. Firstly we are all different and what makes some people ill will not make others ill. I had Taxol as part of my treatment, yes I had sdide effects from it but I would say I was ill only for a couple of days each cycle. My chemo buddy had the same treatment and didn't have any of the side effects I had and she sailed through her treatment and had 2 young daughters to cope with, one a 2 year old! Good luck. Ann

murielw profile image
murielw

Thank you so much for your reply Ann. this as helped a lot.Yvonne

murielw profile image
murielw

Thank you Gina I will ask about the cold cap.Yvonne

Meryl1 profile image
Meryl1

Hi. I'm on weekly taxol and reiterate the positive comments here. It's been effective, without side effects apart from some itching, and I've kept my hair with the Paxman system. Good luck, Meryl x

Suellen2015 profile image
Suellen2015

Ive been on weekly taxol now for 4 cycles...haven't been ill yet but I take the two meds they give me for three days....then I have metonia I take on an as need basis and sometimes I use two ginger gravol...as a replacement for metonia....because its natural....you can take the metonia anyway with the meds they prescribe for three days and a few days after ward just in case...prevention is key....drink lots....and don't get constipated..it can make you nauseated.....I use restoralax twice a day (powder) mixed in juice or water and two stool softeners before bedtime....while your on any steroids or pain killers...

Suellen2015 profile image
Suellen2015

I'm on weekly taxol for months which has stabilized the disease for now and haven't been sick once. of course, I take the anti-nausea pills for three days after chemo and the steroid they prescribed for me and I have a prescription metonia to take for nausea on an "as need" basis" but I haven't had to use it....everyone's different but there are prescriptions to take to help with nausea. Other than than, the steroid was making me hyper for a couple of days while I'm on it...the onc cut me back to one a pill instead of the two. No other symptoms...sometimes a little tired but that's it. Try it and see how you do....everyones system is a bit different but you won't know until you try....I just had a port put in yesterday and I'm sure that will be a big help...this is my third different session with chemo for my disease...I was diagnosed March 2015 so Ive had enough needles injected..my veins were getting scarred..Just a thought if your having weekly needles...Didn't find that difficult...they freeze it and I was wide awake ...the drug they gave me to make me drowsy didn't work at all...but I didn't mind it.

wishing you the best! Sue

.

Suellen2015 profile image
Suellen2015

My magnesium went down so they put me on 420 mgs twice a day...it helps with constipation and I'm off the restoralax and etc...the magnesium works better! so everything works fine.

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