I was diagnosed with low grade OC stage 3b two years ago. At that time my discussions with my oncologist were that low grade is very rare, the use of chemo is not universally agreed for low grade, watch and wait approach is best, but because I still had disease that they couldn't completely remove with surgery I had around 2 years.
Over the last few months a couple of research papers/articles have appeared which mention low grade. One of them was highlighted on here a few months ago which linked to the use of hormonal treatments. Today I found an article from July 2016 which talked a bit about low grade and summarised it fairly well I thought.
In that article there were some prognosis statistics which I don't think were available when I was initially diagnosed. They seem to suggest a longer prognosis than two years on average for low grade.
Now, I don't want to get too bogged down in prognosis statistics as I know they're just an indicator given by doctors which can be arbitrary. But it did get me thinking about what information is available more specifically for low grade.
I ended up looking at the cancer research website and found reference to some research suggesting that there is a difference between high grade and low grade OC when looking at the circulating androgens (steroidal hormone naturally occurring in the body).
So I wondered if anyone else had found any information more specific to low grade OC to add to this growing library?
Part of my reason for this is that I've found I have to spend more time explaining low grade cancer to people as they have certain perceptions about cancer. People find it very difficult to comprehend why I'm walking about knowing I have cancer but I haven't had chemo. I've started referring to it as a chronic condition in the hope that it will give people a particular perception of it. Every now and then I explain things to people and think 'hmm, actually I don't really know much about this aspect as the info relates to OC as a whole'.
Given that snippets are coming out every now and then about low grade OC that indicate differences to high grade I'd really like to try to understand it more. As an example I keep referring to low grade being 'very rare' but I have no idea what that really means. Am I the only person in my area, are there 50 of us, etc?