I asked my CNS nurse to let me know my latest CA125, she rang today and sadly it has risen from 102 in March to 402 today, my CTscan shows a "few abnormalities", but she wouldn't go into details. My appointment has been changed from seeing a Registrar to seeing my Oncologist. She said I have a few options that need to be discussed. As you can imagine I am absolutely devastated. My CA125 has never gone below 38 even after de-bulking and chemo so I guess it was only to be expected, but I was sort of hoping that my CA125 was high due to my Rheumatoid Arthritis, or infection and that my scan would remain NED, but its not to be. I dont know what a "few abnormalities", means exactly but it doesn't sound good. Somehow between now and next Wednesday I have to find some courage to start treatment all over again, just feeling very weak and vulnerable at the moment.
Totally Gutted!!: I asked my CNS nurse to let me... - My Ovacome
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