Scan no change but numbers continue to rise.. - My Ovacome

My Ovacome

18,246 members20,377 posts

Scan no change but numbers continue to rise..

Emalou71 profile image
12 Replies

Hi & thank you so much for all the responses from my post last week. I was really having a bad few days with the emergency scan scheduled in with 24 hours notice and the rise in my CA125 even tho on Caelyx and carbo.

The scan showed no change the tumours in my lungs are un changed and no evidence of the disease anywhere else. My onc is still not happy she has said it could possibly be something is happening but just not presented itself yet (this is what happened when we found it in my lungs) or it could just be the ongoing shingles with each cycle. I had a schedUled CA125 yesterday and it's gone up by another 50 I'm now sitting at 513. 😡

I'm hoping that it starts to go down after today as today I had the final Caelyx combo number 6!!

She wants to see me in 4 weeks time for a follow up and to have another ca125 done. I've stopped worrying now and going on the scan results and putting me big floppy positive hat back on!! I'm in great hands with my onc and will just deal with whatever the next results are I guess. Feel relived that this treatment is over as it's been grim & I'll keep everything crossed that it's not a second reoccurrence pending....

Love to all xxxxx

Written by
Emalou71 profile image
Emalou71
To view profiles and participate in discussions please or .
Read more about...
12 Replies
GoldenGourd profile image
GoldenGourd

I love the image of the floppy positive hat. Hope it works out for you.

Take care, Netti

Emalou71 profile image
Emalou71 in reply toGoldenGourd

Thank you xxx

Chamber profile image
Chamber

Hi emalou

Try and relax for the next few weeks. I know, much easier said than done. Well done on finishing the chemotherapy

Sending love

Judy xx

Emalou71 profile image
Emalou71 in reply toChamber

Thanks Judy, I'm looking forward to feeling better & for a good old fashioned family Christmas takes the mind off things xxx

Choski profile image
Choski

Good plan to go with the scan results. 125 is impacted by a lot of things and shingles is pretty major and very uncomfortable. So hopefully a good Christmas and a scan and blood test after in the early New Year? Also superb to read that you have a good relationship with your Onc as that's so important.

I do hope that you start to feel better now that the 6 th chemo is done and dusted and you've ring that virtual chemo bell!!!

Sending you lots of positive thoughts

Take care

Clare xx

Emalou71 profile image
Emalou71 in reply toChoski

Thanks Clare, I am so lucky with my onc 🙂 Taking it scan by scan now I guess just got yo get my head around it all but I'm ok..... I think lol

Floppy hat in place xxxxx

Enjoy your christmas, and that is great news about the scan, so hopefully you are done with chemo for the foreseeable future, Happy Xmas

Emalou71 profile image
Emalou71 in reply to

Thank you & merry Christmas xx

Cropcrop profile image
Cropcrop

It's good that you have a good relationship with your oncologist, she seems to be on the ball. Try to be positive and go with the scan results, as other ladies have said on this forum, the CA125 can fluctuate for different reasons. Hope you feel a little more like you for Christmas and be safe in the knowledge you are being looked after. Have a lovely Christmas and put some tinsel on the floppy positive hat. Take lots of care & sending big virtual hugs & lots of love ❤️Xx🎄 Jane

Emalou71 profile image
Emalou71 in reply toCropcrop

Thanks Jane, feeling much calmer and positive & looking forward to Christmas, merry Christmas to you xxxx

Grace123 profile image
Grace123

What a healthy attitude you have, & sounds like a good oncologist too. Just wishing you the very best and praying you're in remission. Sending lots of love xxxx

Supernurse profile image
Supernurse

❤❤❤ hugz

Not what you're looking for?

You may also like...

Panicking a little bit..

Hi all, I'm having a wobble today. Went to see my onc for a check up before my 6th and final Caelyx...
Emalou71 profile image

CA125.......JUST KEEPS ON RISING!!!

Brief history. Wife diagnosed (stage 3c high grade serous OC) in Oct 10. Dec 10 hyster etc. Jan-...
thehusband profile image

CA125 rise but clear PET/CT scan

Hi everyone, I have been going through this OC journey with my partner for the past year. She was...
Stuee01 profile image

Rising CA125 but clear scan.

Hi all. Hoping you are all as ok as you can be. Had the results of my scan today. All looks fine....
Suzanne333 profile image

Caelyx

Saw my onc. Thursday and weekly taxol not working tummy swelling and ca125 rising. Going into...
nikki9 profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.