Julie hadn't written much on here recently but she had previously and had done so much to raise the profile of OC awareness. Julie passed peacefully with her lovely family around her on Saturday evening. She was a truly beautiful person who lived much longer than initially expected and lived with grace and tenacity. Despite having multiple treatments throughout 5 years, she raised money to support children in Cambodia and for OC charities. Her capacity for love, friendship and fun (particularly holidays) was immeasurable. I will miss her warm heart more than words can say but feel privileged to have met her.
Sending prayers and all good wishes for strength and peace to Steve and her gorgeous family.
🙏❤️💐
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LittleSan
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Guessed it just be that Julie when I saw it on the Facebook forum. So very sad for her and her family . And on a selfish note, all these recent deaths just make bearing this disease that but harder - I asked my husband at the weekend how it is possible to live without hope as the more I learn about this illness the less Hope seems an option to me - thinking of Julie and of us all x
Totally get your comment about hope but hope is all we have..... that and the fact that we actually wake up each morning which in itself is a blessing. We seem to be losing so many ladies off the forum lately, doesn't matter we haven't met in person but it matters we feel a kinship because we are going through the same things. I feel extremely sad today as I am sure others do. Think we all need a group hug xx
Sad. Yes. Again. Without hope, I'd just sit down and die now. Hope allows me to push this monster out of my mind for awhile so I can enjoy the HERE and NOW. The mind/body connection is powerful. I'm just going to go on imagining I'm cured until I hear otherwise. And yes, I've got many permanent side effects from surgeries and chemo that have profoundly altered my every day living. I just figure as long as my quality of life allows me to enjoy my family, that's good enough for me. Thank you for posting consistently and with compassion. You make me think I can do this! With love and hugs, T
I find it really hard too but there is definitely hope. My mum never recurred. Julie was given six weeks to live exactly 5 years ago and lived an amazingly full life up to a few months ago. Big hugs all round. Julie used to find losses hard but dusted herself down and lived life to the max. Xxxx
That’s all we can do I’m on wait and wait ( can’t say watch as so far nowt to see just elevated markers ) and the endless surveillance is affecting my well being enormously - I am on 3m scans and I tried to explain it to my husband by likening it to the scene in the deerhunter when Christopher Walken’s character plays Russian roulette - he new registrar hasn’t helped as last appointment he kept banging on about when and what chemo - my previous one had been much less in your face and that suited me better - somedays I’m fine but the recent spate of deaths has shaken my pragmatic equilibrium x
I think we're all quite lucky, actually. No one knows how much time they have. Think of all those passengers on the two 737 flights. Do you think they had any idea those moments would be their last?
We are extremely fortunate to be in a place where we have good doctors, and options, and amazing support.
I feel sorry for anyone who can't recognize that.
This thread is for expressing sadness for a lovely woman lost and supporting the people who knew and cherished her. It's not a place for self pity.
Gutted. I had missed Julie's posts of late. She was always so kind and motivated, despite running (or sometimes crawling) the gauntlet that is the neverending OC treatment mill. Her pictures always made me imagine a large, very supportive family who were right with her all the way.
I wonder if Julie, Sarah, Lily-Anne and the others are raising a mug of something, wherever they are. We certainly do, in their name. Here's to you, ladies past and present.
My thoughts are with her family.
Thank you Sandra. And... How are you getting on with the new treatment? Hope side effects are bearable and hair under control. xx
I've not started my new treatment yet because I have to wait for 4 weeks from finishing Niraparib. I've just signed the consent forms today for the CEBOC Trial. I'm on a low residue diet and coping OK on that. My tum seems to be getting bigger by the minute but the pain is relieved with just paracetamol so I'm doing OK.
I'm sure Julie and all will be cheering us all on (especially with our other friend Debs - Dolly's Mum). Cheers to all our lovely friends whose physical presence we no longer have but whose support remains with us.
Fingers crossed then. Hopefully the treatment will get rid of that belly.
I remember when I was already unknowingly riddled with 10 liters of Ascites shortly before my diagnosis, and boarded a Ryanair plane, only to be asked 'Excuse me, are you pregnant? You won't be able to sit in an exit row then.' - Say whaat?
I'm plodding on, Sandra. Still on Avastin and Letrozole. Not technically NED because my marker is still high, but when it was last taken in March, it was at the lowest since records began (that is, at my diagnosis) - 77. So, annoying exhaustion be d**ned... I'll keep going this way since it seems to be working in a way. Hugs, Maus
Arghhh I'll bet the pregnancy comment stung. I'm fortunately too old for folk to make that mistake.
Even the maintenance stuff takes its toll eh? I was on Avastin for 3 years and it was pretty tough at times. Served me well though. Bought me 3 and half years chemo free.
So sorry to hear this news! I had been in contact with Julie on this forum just a few months back. I am also from northern Ireland. I was enquiring about her treatment in Manchester. My mother was just 59 and had stage 4b. Julie was so nice and took the time to respond to me. My mother passed away just 5 and half months after diagnosis. Julie sent me a lovely post when she heard. My thoughts are with her family. Such a difficult time! All these ladies gone way too soon. Still hard to believe when someone you love so much is just gone. May they all rest in peace x
Unfortunately, this damned disease seems to affect the most lovely people. Julie was one of the most warm and remarkable people I've ever known. Even in her last few weeks when she was poorly, she found time to text support and encouragement. Such a star. Big hugs to you. I worry about my girls and all they're going through with me not being well. Xx
So many lovely ladies getting taken by this disease lately! I hope one day a cure is found for this! May Julie Rest In Peace xxxx
So very sad, a lovely lady. Condolences to her family.
Julie is one of the first ladies I remember on this wonderful forum. Her kindness and positivity gave me hope that you could live with this disease and not lose yourself.
My thoughts go out to her family and friends and to all of you wonderful people who like her take time to answer messages and show compassion.
These wonderful women may have left us but their impact on me has been hugely positive and lasting.
Heartbreaking to hear of Julie passing. She was a great inspiration to me when I first joined the forum and I was hoping and praying that she was well.
Sending sincere condolences to her beautiful family and friends.
So many beautiful women lost to this disease before their time. So so sad.
I was doing a ‘walk in her name’ with OCA for all our Teal Angels on Sunday morning and especially for Lily-Ann, Harpist , Sarah, Suzanne and Debs and had included their names with others on a memory wall.
So sad to now learn that Julie passed on Sunday morning especially as Mothering Sunday. 💜
This is so sad, another lovely lady taken too soon and much much too young. I am so sorry for her family especially her young children now without their mum. Fly high lovely Julie 😔🦋 ❤️Xx Jane
I'm so sad to hear about Julie. She was kind and helpful to me whenever I put up a post looking for advice and I'm sure many other women had the same experience. She will be sorely missed. My condolences to her family.
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