Thank you to all the ladies on here, everyone has been so helpful. You all are truly keeping me going. My mom has had 3 out of 6 of her chemo treatments. Oncologist said her scans have been great but have encouraged her to take the Avastin along with her front line treatment. She is worried about the side affects. A week ago she finally told me she was on board. I was releaved up until today in which she told me she changed her mind. My question is - has anyone gone for 6 chemos (she’s on taxol/carbon) and then on watch and wait? How long was your remission?
Again thank you everyone for your continued support, this board is a god send
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Lind58
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Hello - I am currently on watch on wait as I decided Avastin was not for me. My oncologist wanted me to start Olaparib but the BRCA results did not come back in time (starting has to be within so many weeks of finishing chemo) I finished treatment (6 chemo and de-bulking op) at the end of November,18 with a "no evidence of disease" status. I have my 3 month check in a couple of weeks and am hoping that I am still all clear, but if not, I am happy with the decision I made as I have had a wonderful treatment free/symptom free
few months which has allowed my body to recover (almost completely) for which I am very grateful. xxx
I am on Avastin after finishing 6 chemos (ciaplatin, taxol, avastin) at the end of August. Not sure if it’s working because my CA125 is creeping up. So doing a scan in March to see what’s going on. I am in the US. It’s so helpful to see what treatments people are having success with. My Doc said if I have a recurrence we would do another round of the same chemo because it worked so well the first time. It knocked back all of my tumors except one and my doc had declared me NED. So pray that I am still NED. I don’t want more chemo. I’m 53 and sick of being sick !!!
Hello - I am also on Avastin following treatment for a recurrence. My chemo (carbo, taxol and Avastin) ended in January and I remained on the Avastin but my CA125 has already started to rise. I only found out an hour ago that it’s going up so I want to call my doctor in the morning because I am so discouraged and don’t know if I’m running out of options.
I know exactly how you feel but don’t give up hope. My Dr said that if he sees another recurrence that we would just do chemo again. So there are a lot of options out there- hang in there !!! I just read that they think a cure is only a few years away. So we just have to hang on.
Thank you- I’m doing everything I can to keep it at bay. I have a great oncologist. I’m on medical marijuana to help with symptoms and my doc says there is evidence that it can help shrink tumors so I take it daily. Specifically the high CBD low thc (so I don’t get super high). I try to stay positive and as active as possible. My biggest bother right now are my feet - I have neuropathy, my feet feel like they are asleep. If anyone has any suggestions for that - I would love to hear them ! I’m trying B12, L Glutamine and heat/ice therapy. And I try to walk a lot. Nothing helps yet. Thoughts ?
My biggest problem are my feet as well. During chemo they throbbed all day and then night time became worse! I had been prescribed Gabapentin which seems to help a little. One of the chemo nurses told me to rub vapo vicks on my feet and then cover with socks while sleeping. Said it increased the circulation. It did help me get through the night, but, daytime...who wants to smell like Vicks? lol.
Today I went for accupuncture for the first time.I don't know if it's mind over matter, but, my feet are not stinging like bees today while at work.
I actually have CBD oil which I haven't taken. Is that the same?
Good luck with your feet. I know that if feet or teeth hurt...makes the whole body hurt. Feel better!
Thanks for the tip on Vick’s - I will try it. I see that you are in the US too. I like this website - and we have one in the US that I am also on - Inspire.com
The more info, the better ! I like both websites- there’s a ton of info to look at.
As far as CBD, there are a lot of types out there. The kind I use is from marijuana. But if you have the Hemp kind, give it a try. It can’t hurt. It’s topical, right ? If it’s something you ingest, I would ask your dr.
Thank you for your information. My CBD oil is internal so I will ask my onc next time I see him. Would it be ok if I went on inspire.com or is it invitational. I love reading about success stories and inspiration.
I was diagnosed with stage 4 high grade serous carcinoma in May 2012. I had carboplatin and taxol for 2 cycles but had to come off taxol because of peripheral neuropathy. I then had 4 cycles of carboplatin only and started on Avastin with the 6th cycle of chemotherapy. I had 18 doses of Avastin and had interval debulking surgery after my 3rd cycle of chemo. I went back to work while I was on Avastin. I have had one recurrence for which I had surgery in March 2017 but no further treatment was needed. I have been well since 2017 and am enjoying every moment of my life. My mission is to be well. I hope your mum does not experience too many side effects and decides to continue with the recommended cycles of chemotherapy. Take care and I wish your mum all the best. X X
Thank you. I too pray and hope your mum lives a long healthy life. One must always hope for the best. X X
Hi Lind58. I was diagnosed 3c in Nov. 2011. First remission was for 18 months. For the recurrence, I was on Carbo/Caelyx/Avastin, with avastin continuing indefinitely as long as side effects were acceptable & my CA125 etc stayed within the limits of the avastin trial.
My side effects are minimal and It's now > 4.5 years I've been on avastin. It's been a wonder drug for me. Best wishes. Pauline.
Hello Wanthealth. My side-effects from taking avastin are: raised blood pressure - I have to take BP tablets as the trial requires me to have my BP at 139 or below; I also get sneezes & a runny nose - mostly in the morning and when I eat; my feet become sore if I'm on them for hours at a time but I have no idea if the Avastin has caused/contributed to that, as I've been on avastin so long and I'm now 72, so the sore feet might just be as a result of my age. I fully recommend avastin.
Wonderful story! I am hearing more and more about Avastin's direct impact on 2nd line treatment. The remissions seem to be longer. I am going to definitely ask about that. Hope it is approved in the US.
I am in the US and on Avastin for maintenance. I have cervical cancer that metastized to lungs. Not sure why it wouldn’t be approved for ovarian cancer ?
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