We're applying for Avastin! Wish us luck! - My Ovacome

My Ovacome

18,246 members20,377 posts

We're applying for Avastin! Wish us luck!

Flyhigh profile image
6 Replies

Found out today that unfortunately Mums cancer is back - 6 months post first line treatment. Plan is to start carbo/gem regime in a couple of weeks.

I asked about the possibility of applying to the cancer drugs fund for avastin, fully expecting the onc to try and put me off ( don't know why?! ) But she was really positive and is going to apply for the drug for my mum - I'm delighted. I know this is only the first step in actually getting this drug but we are really hopeful.

I wanted to say thank you to all of you on this forum - especially Patsy who I know has gone through a similar process getting this drug. I even told the onc that if we are turned down that we must appeal the decision as I know of someone who got it on appeal! Thank you Patsy for writing about it on here - without the knowledge of your application for avastin then I'm not sure I would have been so confident with asking for it myself.

Wish us luck and keep your fingers crossed everyone for us please xx

Written by
Flyhigh profile image
Flyhigh
To view profiles and participate in discussions please or .
Read more about...
6 Replies
MargaretJ profile image
MargaretJ

Good luck with the application and best wishes for the teatment.

Margaret!

Hope your application is successful. That's the good thing about this site. Lots of knowledge. You sound like a wonderful support to your Mum. My daughter (24 at the time) was also amazing when I was going through diagnosis and treatment in 2010 and I can't tell you how much that meant to me.

Good luck.

Love Chris x x

wendydee profile image
wendydee

Good luck. It's such a good thing to be on here and share support and info!

All the best,

Love Wendy xx

BusyLizzie profile image
BusyLizzie

Hi Flyhigh,

Luck duly wished...I have private messaged you about another possible avenue to access Avastin if all else fails.

Love Lizzie

X

PatsyH profile image
PatsyH

Dear Flyhigh

I'm SO pleased my experience with finally getting Avastin may have helped with your request for the drug. Hopefully an appeal wont be needed, especially as your Mum has relapsed only once. I believe it's when there are multiple relapses (three in my case) that the Drugs Fund is less likely to consider Avastin a justifiable expense. Of course, I am now hoping to prove them wrong!

I will be blogging to let everyone know how it goes, but it's still very early days as I had the first treatment just this Thursday.

So everything is crossed for you and do please let us know what happens.

Love to you and your Mum

Patsy xxx

Whippit profile image
Whippit

Dear Flyhigh

Thanks so much for posting your news about Avastin and the history before obtaining this prescription. You can't believe how much this gives me hope. I responded well to carbo-platin only and on one of my regular checks after this as a first line asked about Avastin. I was told it was only used for first line treatment and felt devastated that this new drug might have helped me had I only known about it before my first line treatment.

I'm attempting to go through the blogs to trace what treatment people do have. It's very different around the country. At least I can go back to my oncologist when the next time comes round and tell that that if others have had it after the first line treatment, why not me?

I do hope the treatment goes well. Good luck!

Annie xx

Not what you're looking for?

You may also like...

THE REASON WHY I HAVE BEEN REFUSED AVASTIN - but it aint over yet folks

Apparently I'm unusual in that although my OC has recurred three times, each time I have had chemo...
PatsyH profile image

Carboplatin/taxol with Avastin for 2nd line treatment

Hi, I keep up to date on here but haven't posted for a while. It's looking likely I am in...
mummybear59 profile image

Avastin for 1st line treatment - NICE says no!

Dear All, Sadly the news from NICE towers is not good. They have declined Avastin as a...
LouiseOvacome profile image
My Ovacome Team

Help needed with NZ petition for funding of Avastin and Lynparza for Ovarian cancer

Hi everyone, Ovarian cancer sufferers in NZ would really like your support with signing a NZ...
TarbonNZ profile image

Olaparib/Avastin for more than two years?

Hello everyone, I was all ready to wrap up my Avastin/olaparib treatment now that the two year mark...
FlowerRose profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.