Hi Zena I'd take it as good news. Life is full of what ifs. Who knows, u could get hit by a bus tomorrow., win the lottery? Nobody is guaranteed tomorrow so if I were you I would enjoy the here and now, not worry about those what if's. Worry will simply ruin your today. Who is to say a tumour will ever develop. Deal with it when it happens, IF it happens. Goodness I sound preachy, I don't mean to and I probably sometimes need to follow my own advice lol. Hope you are ok. Kathy xx
Hi sweetie, well if your lovely professor isn’t worried and wants to wait and watch I would get on with living your life and enjoying your gorgeous girl! If you’re worried at all by increased symptoms etc before the 6 months then seek some reassurance again but I would take it as good news to get on and not have to have treatment yet!
It’s easier said than done I know but a good saying I was given is that thoughts are just that they’re not facts so the fact is she’s happy to leave things 6 months and she’s the expert, go with that and enjoy all that living and partying lol 😂
I wish!We were hoping to go late September but,I’m back on the surgery waiting list😢Just had pre-op so praying I won’t have to wait long...thinking of you xx
It's so hard to plan stuff isn't it? I'm trying to get on with life but, have found it very tough to be honest.That's something we can all sympathise with is is not?!
Had several MRI's due to a significant return in symptoms and I'm waiting for a laparoscopy. Gynae/Onc is 95% sure nothing sinister structurally. Could well be a return of Endometriosis but, nothing certain until they get in for a look.
I'm due to go on to a hormone inhibitor also. I do appreciate I am very fortunate to be disease free. I'm just praying there are no nasties lurking xx
If we are both there in Spring I’m so buying you a 🍸 cocktail!
I’m so pleased the letrozole is working for you,long may it continue.
I was low grade stage 1a which I know is very lucky indeed but,I was also full of Endometriosis as many of us are and when symptoms return it’s so hard to tell the two diseases apart.
My new gynae/onc has been good but,I respect I’m down the list priority wise and that’s tough sometimes.I did get the scans really fast which was good but,the surgery wait could be sometime.
I would think that the key -- and I did read your subsequent post about residual -- anyway, the key is whether these cells grow. This diagnosis is like a gift to you. Don't let this rain on your parade. XXOO
I understand your concern. We all want to be told we're NED. Take good care of yourself.
Suggesting small volume of disease so I googled as I do not understand I know I shouldn’t but I hope this is true.
Minimal residual disease (MRD) is the name given to small numbers of leukaemic cells (cancer cells from the bone marrow) that remain in the person during treatment, or after treatment when the patient is in remission (no symptoms or signs of disease).
Sounding good and still being closely monitored. What ifs are hard to deal with. On the way to the ferry last year a car 3 in front of us in the motorway 3rd lane suddenly swerved into the crash barrier and I thought it was it. Luckily we all managed to stop in the fast lane without a pile up. You just never know so I am keeping my eye out for that number 9 bus waiting to get me.
You can’t help thinking but hopefully it will lessen as time goes on.
That's ok'ish news. Especially if you have a slow growing tumour kind. Mine is low grade serous OC i.e. also slow to progress. I was on watch and wait for over two years (with a ca125 around 100, and scan results that suggested "stable disease" at one point, "possibly some calcified lymph nodes", "small deposit on bowel" and "nothing to see here" at other times) before a rapid rise in my ca125 indicated that now there might be some accelerated disease activity, and we went for surgery.
Easier to recover from than the first one, although it was essentially the same laparotomy cut. Guess because this time, only lymph nodes were actually resected.. everything else just fondled and ogled and checked for possible tumours.
You've had lots of good advice here. It certainly sounds good news to me. I'm guessing that a surgeon would suggest to wait longer until there's definitely visible operable disease whereas an oncologist may want to start chemo earlier which may explain the differing time scales. I'm only guessing remember but there's only two weeks difference between 10 weeks and three months anyway.
Oh bless you, Zena. I understand completely why you are bothered by the news, but as the other ladies have said, you’ll be closely watched, and if the Prof isn’t bothered at the moment, take that as a good sign. Our doctors know what they are dealing with, and they know what they are looking at. If you carry on feeling fine, then go with that, and if you begin to feel ill in anyway, you know who you can contact. Take care of yourself, Vicki xxx
I'd take it as good news that she didn't think there was anything to worry about. She should know what she's talking about and if she's not worried that must be good.
I understand your concerns but there are so many what if's every day. See what happens in the next 6 months. Your CA125 is really good.
I'm sure you'll get lots of positive thoughts from all us ladies we always try to look on the bright side.
Maus, it sounds positive, because she’s seeing you in 6 months, however I know it’s hard. I longed for NED, wouldn’t have accepted anything less in my mind. Until I recurred then I was grateful for ‘stable’
Things on the move again now so wondering what term of phrase I’m expecting.
Small steps, lots of mindfulness, which only needs to be allowing your mind to stay in the moment, today, how your are today and keep going like that until the mindfulness becomes your subconscious. Enjoy a break, I know I’d be celebration 🎉 xxx
I would be very happy she seems such the optimist. When I was told months she told me years. That was 18 months ago so I prefer her psychic powers to the other crystal ball 🔮 subscribers
Here’s to the next few months of tucking cancer away in a box 📦 and leaving it there until it absolutely has to come out and be scrutinised
Hi Zena. I really understand how hard it is to accept this kind of news when deep down all we want is to be told we’re cured and can go back to the way things were pre OC. It’s the uncertainty that I find hard (even though I know intellectually that life is uncertain for everyone). When I had my first recurrence two years ago, I thought I’d not be around more than a few months but it was eighteen months after finishing second line before I needed third line in June. Looking back, I didn’t fully embrace life in those 18 months, it felt like being in limbo so once this chemo is finished, hopefully in October, I aim to make the most of each day, not sure how yet. Hope you find a way to let the anxiety go. Very best wishes Jo 🌺🌼🌸🌻🌹
I think "not recognising" is a professional tactic they develop. Mine does it too and I've been seeing her for nearly 8 years. I think it's a way of concentrating and they certainly need to be able to do that with the waiting rooms they have.
I think many of us have faced the horrible sort of transition from it looking great, then perhaps not so great. I do think it's not helped by them not being upfront with the stats from the start.
But, as all the wise women have already said, what she says is pretty upbeat and life is full of what ifs. Just think about the Genoa bridge.
We can't let cancer take over our lives and you've got a good one to get on with living.....so get on with it and enjoy!!
I would also take it as good news Zena. The wait, and the worry for the next 6 months would be a waste so my suggestion is to give yourself a time to think about worrying--maybe one week or so before your next tests--but to try to push it out of your mind before then so you can enjoy all there is to enjoy with your life, your holiday(s), etc. I would trust your oncologist and she sounds like she knows what she's doing. And my onc said don't forget you have an immune system that may also try to get rid of the little seeds and that also helped when I was told that. Slow growing, if at all (and maybe not!), sounds like a time to enjoy. Thinking of you! oxoxo Judy
Hi Zena - I'm coming in to this a bit late, but I'd say don't do chemo if it's not necessary. I'm sure a lot of us learn to live well with stray cells and invisible microscopic cells that it may not be possible to clear. Treatment gaps are great and to be filled with real life and normality as well as a big load of things that give you pleasure. My aim was to forget about the cancer - initially that might be for 10 minutes, but gradually I got to whole days of not thinking about it, and that gives the greatest buzz. When we're on the treatment treadmill we can forget to be the people we really are. So go out and enjoy! Maybe a 'living with the impact of cancer' course at Penny Brohn UK in Bristol would help - they are great pennybrohn.org.uk/ Good luck!
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Enormous Post Op Incisional Hernia
A Very Angry Daughter!!
sounds like stage ?
six-month post chemo CA125 result. And Avastin. Is it available in the UK?
Post Op/Chemo Results
